Quote:
Originally Posted by firegirl
My pulmonologist told me about that exact same study. Apparently that is either the only or one of the only studies done yet. I'm kinda skeptical just bc thats such a small study. I did some reading up on it on forums & got the impression that it can be helpful during the beginning of RSD & can reduce pain a few points, but not a miracle & doesnt work once you have had RSD long. I hope I am wrong & that it works. I posted about this too, maybe you can find others responses on there. Hope it works for you.
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In my experience, which involves living with whole body CRPS for 34 years, IVIg does work. It took 8 months of 20grams Prigoven infused every 3 weeks.
The thing about study size is that only big pharmaceutical studies have the cash, or else government funding (which they then turn a profit on), to run big studies. Pharmaceutical companies are not able to patent IvIg. These companies make money by selling patented substances. And, they are not going to bother studying anything that could displace the drugs they make and patent.
So far, healing from an autoimmune disease like CRPS or CRPS or MS or Lupus, etc. has not occurred via symptom managing (pain killing) with drugs and immune modulation (really immune system killing) drugs.
IvIg has done the most for me. Iv glutathione and lipoic acid helped too. I don't bother with lipoic anymore. I get glutathione weekly and IvIg every 3 weeks.
Wishing you good healing. ambika
12-07-2012, 11:40 PM
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RSD for 34 Years And It Worked for Me
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