Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-04-2013, 06:04 PM #1
Ambika Ambika is offline
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Smile CRPS Works for About 50%...at any stage or time

Quote:
Originally Posted by Kevscar View Post
There was no funding to tale that trial any further so I wouldn't put much stock in the results from 13 sufferers and when I asked the Doctor in charge if he would be prepared to spend 3 - 4 hours for the chance of £500,000 in research funds he said he didn't need the money unfriggingbelievable
Dear One,

After 30 years with severe CRPS, I am pain free and medication free. IvIg, Privogen brand, 20 grams every 21 days, is what did it.

There is much research evidence showing that approximately 50% of people with neurodegenerative disorders are able to be helped with IvIg. Not all of the research has been done in this country.

There is so much evidence of IvIg's efficacy, that the Canadian government pays for patients to receive IvIg therapy. My daughter, who has recovered from severe MS with IvIg therapy (Privogen brand), receives free IvIg at the MNI, Montreal Neurological Institute. The Canadian government only pays for unproven therapies or medications.

If you have low IgG levels and do not have low IgA levels as well, then it may be worth finding out if you are one of the 50% who can be helped with IvIg therapy.

Wishing you success in healing!!!
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"Thanks for this!" says:
reluctant@thetable (05-11-2013)
Old 04-05-2013, 03:37 PM #2
alaska49 alaska49 is offline
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I too want to find a doctor close by to try the IVIG treatment, with RSD I was also diagnosed with sarcoidosis which IVIG is used to treat it.
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Old 04-05-2013, 04:56 PM #3
tos8 tos8 is offline
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Yep I would like to try this aswell. Just trying to find a dr in my area willing to try.
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