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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Have you had an MRI to rule out lumbar disc hernia or other axial pathology? When you hear stampeeding hoofbeats, think horses not zebras.... I'm not say'in....I'm just say'in... |
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#2 | ||
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I've had 2 MRI's on my knee but none on my back. I will inquire about it to my doc but I doubt my insurance will cover another MRI so soon.
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#3 | ||
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It all comes down to clinical indications as whether or not your insurance will spring for another MRI or if it's even ecessary. If your exam findings are suggestive of a disc issue, for example in your lower back, then your doc may feel compelled to order a lumbar MRI. It's not so much that your insurance counts how many per your you have and basis a decision on that merit. |
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#4 | |||
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I'm so sorry to hear this. I had a block done on January 31st this year and I now have terrible, severe pain in my entire upper body. It has been a nightmare with things just getting worse and worse and worse. We're still looking for other explanations besides a spread of the CRPS...but I am really scared that CRPS may be the explanation for the new pain...especially after so long with no answers yet. But so far I am hoping I have just had incompetant doctors and that there is another explanation besides CRPS spread.
I really wish I had not let this doc convince me that blocks were the answer. I was doing so well before with meds and physical therapy. Not pain free...but functioning. I'm a stubborn person and will do anything that I need to do to keep that function...but this latest stuff has been a major setback. physical therapy was probably the best thing for me...but without the meds I wouldn't have been able to DO the PT. I was on Lyrica, Mobic, Ultram, and Doxepin along with Lidoderm Patches when I was doing well. Even once I 'finished' physical therapy I still continued to do all the exercises every day at home. It was hard...but totally worth it. I got hurt at work when I was 25 (am now 27) and I am not willing to let this thing get the best of me. I wouldn't continue the blocks if I were you. I would try the meds, physical therapy, and possibly using a TENS unit and see how those treat you. I've heard good things about Ketamine...but haven't tried it myself so I can't really speak to it. There is so much information here on the board and it's been a great resource for me. I hope things start looking up for you soon. ![]() |
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#5 | |||||
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Junior Member
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------- Unfortunately I used to have an opiate problem after a car accident last summer (which hurt the same knee, opposite side of the knee though and the kneecap). I was prescribed percocet 10's for 2 months and the dr did not ween me off at all and I started withdrawing badly (and was still having knee pain anyways) so I turned to a friend who could get some roxicodone and headed down a slipperly slope. I went to rehab in Calif and really turned my life around and got myself into incredibly good shape and continued that when I got back home to NY. That's why this injury has been so frustrating as it has killed my physicality. I also have no desire to be an opiate addict again but my tolerance is so high that I have to take the maximum prescribed dose or more just for pain relief as it seems to be the most effective pain reliever for me at this point. But honestly I'd rather be on them than experience this raw gnawing burning pain. At least on them I can walk around without too much pain. Although lyrica seems to help or at least the mix of the two with anti-anxiety meds. This seems to be at least a percentage of a mental issue, as I can have sex in a couple positions that don't hurt and when I'm doing it (or receiving fellatio) the pain is almost non-existent or only a 2-3 instead of the usual 6-8 (that's including meds). Thankfully I have an amazing girlfriend who is an angel and is really helping me through this. Sorry for rambling I'm just very confused and a little scared as I really want to get back to the gym and working physically as that's 75% of my work duties. -Dan |
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#6 | ||
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Senior Member
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So sorry for what you are going through....
I have a 20 year old daughter. it sucks that you are faced with this are your age. on the other hand, remission is more likely when you are young and when it has been caught early. the street version of k may not give you the same benefits as the k that's administered by a medical facility. You should be REAL careful thinking that you can duplicate the effects...the dosages need to be titrated at a certain rate over a certain period of time. And side effects can be nasty, I get terribly nauseous without Zofran added to my IV. in addition, the most effective treatments have been demonstrated to be the multiple day protocols. For instance, I started out at 10 days in a row. You really should have good medical care when doing a drug like k for that long... Most of us have experienced arrogant, egotistical docs who don't listen to us and don't care about our pain. Try to bring someone with you to your appointments for support - a parent or a sibling or a dependable friend. The RSDSA has a list of pain Mgmt doc on their website. Go to RSDS.org. I really hope you get the help that you need quickly. keep in touch.... Good luck, Sandy |
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