Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-18-2011, 07:59 AM #11
bobinjeffmo bobinjeffmo is offline
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Join Date: Mar 2009
Location: Lohman, MO
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bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
Default The problem we all deal with

You mentioned that you're wasting away from head to toe? Does that mean that your entire body has now become incapable of doing anything or handling any kind of motion whatsoever? If so, my heart goes out to you since it appears you really can't do anything more than just sit and wait for the day to pass.

I'd like to suggest a bit different approach. How about working your tail off with whatever you still have even when it still causes you pain? Our bodies are designed to move. When we don't, they atrophy away so we don't have any muscles to use when we really need them. Part of the RSD hell is accepting that we have to move our body even when it does cause us additional pain. If we don't, then our pain actually increases over the long haul thus making the situation even worse - only we don't realize it at the time.

You do need therapy and I know that I'd be lost without it. I have gone for years and also do what I've learned at home. We must move whatever body parts we can so we don't loose anymore than we already have.

I know it's hard, but I know you'll do whatever it takes so you can create a better life. That's half the battle right there. Best of luck. Bob.

Quote:
Originally Posted by debbiehub View Post
My muscles from basically head to toe are wasting away...I have no padding left in my arms or left leg...I really don't know what to do anymore...In such a state of despair.. Can't stop the tears...My arms are so fatigued. I think I have a tumor on one of my parathyroid glands..we r looking into it but I seem to have all the signs- in my blood work. Just at the end of my rope with nothing left to hold onto.

Thanks for letting me vent.

Debbie
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debbiehub (04-19-2011), SandyRI (04-18-2011), Sonny1 (04-18-2011)
 


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