Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-08-2011, 03:42 AM #11
daniella daniella is offline
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Join Date: May 2007
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daniella daniella is offline
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Join Date: May 2007
Posts: 2,998
15 yr Member
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I am not sure your question exactly but for me not just the rsd area is sensitive the near areas are as well. Basically my legs are off limits for anyone to touch. I have peripheral neuropathy as well.
A few other thoughts. In the start getting an rsd dx was also hard for me because I did not have all the symptoms and also did not have an injury or accident for this to happen. At one time I was also suggested it may been a trapped nerve but it turned out also not to be. You stated you had dx tests. Did you have an mir or emg/nc?
I do agree one needs to have all the appropriate tests to rule out or possible dx other conditions. For me I am so dx tested out and have not found the why behind my peripheral neuropathy or rsd that developed at age 28. So now it has been about treating the pain which is obviously harder since there is unknown.
Are they working with any meds with you right now such as neurontin etc?
I think part of what makes rsd so hard to dx and treat is we all are impacted in a different way.
I hope you get some relief and answers.
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