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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-05-2012, 04:59 PM | #71 | |||
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"Thanks for this!" says: | nigel ep3 05 (01-05-2012) |
01-05-2012, 05:45 PM | #72 | ||
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Thanks so much for your advice again, very helpful!
One major problem in my case has been trying to find the underlying injury, if any at all! A few months ago in Germany we pointed out the hamstring tendon connecting into behind the knee. However now we know there is more to it than just a tendinitis injury. The problem is definitely in that area causing my rsd to radiate to below me knee and foot. I have had lots of accumulative trauma to this area from 3 falls, surgery and repetitive strain injury following the surgery. Infact I have a stitch on the inside of my knee just where it folds. The docs are definite I have crps however some including my pain doctor believes there is something more to it. She believes I have a firing nerve around my hamstring tendon/popliteus fossa besides the crps. I have done an EMG and numerous nerve tests and MRI's which did not show any problems. Does this 100% rule out a nerve entrapment/pinched/scraped you name it? I have read that nerves can get irritated from adhesions cause by scar tissue leading to contraction etc. This really matches my case but how can I 100% rule in or out a nerve is irritated from this scaring etc? Otherwise I can just try and compare my symptoms and see if other users have same issue of feeling as though you are stepping on a nerve and getting shocked always in the SAME particular area and constant contraction/spasm and to mcuh discomfort to 'open' the area? Im not even able to lye down with a pillow as my hamstring keeps contracting/spasms and can only keep my knee at 90 degrees where my hamstring is completely loose. This however is the worse physical position as my joints all tighten up but i cant do otherwise. Sorry for going on and on but im just look for some help/answers and compare symptoms etc Thanks, Nigel |
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01-05-2012, 10:28 PM | #73 | |||
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Going on and on is often the only way we find the answers to our many questions that we have. I've certainly done my share of it.
Hope someone with a similar experience to yours can jump in and give you some more insight. Since the RSD spread to my upper body I often get periods where my elbows (as an example) with freeze up and I can't bend or straighten them out and the pain is just excruciating. But that doesn't seem like what you have as it seems your problem is so much more severe (for which I am SO sorry for you...even with the pain I have every day I am so thankful that it is not worse and I hate to hear that people are suffering so much more than I am). I do not envy the position you are in having to evaluate a treatment option that could make you better with a definite risk of making you worse. Wish I could be of more help. |
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01-09-2012, 10:34 PM | #74 | ||
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I have a similar situation in that after 7MDs I was dx, and it was under the 6th month mark. Unfortunately, my pain was not reversed. I would recommend pain management with someone who specializes in the disorder, and get a prescription for physical therapy. You do not want that knee or foot to be idle. Good Luck, Lucky853 |
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01-10-2012, 02:05 PM | #75 | ||
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"Thanks for this!" says: | catra121 (01-10-2012) |
01-10-2012, 03:16 PM | #76 | |||
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Such a big part of my fight against RSD is to continue to find things that I enjoy in life and to do them. Yes...they can aggravate the pain, but I do my best to use all my little tricks to lessen that pain as much as possible. I have also had to find new ways to accomplish things that I enjoy (different ways to hold things and stuff like that). I also try to find new things to enjoy that fit within my physical limitations. It's important to remind ourselves WHY we need to fight so hard to get that function back. Quality of life is so important and a big part of that is enjoying life as much as possible. It's important to know your limits and learn to understand the signs that say when you need to stop and/or take it easy...but to balance that with still doing the things you love and enjoy if you can and to find new things that you enjoy if you can't do the same things you did before.
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