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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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My daughters gastric pacemaker

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Old 10-02-2012, 09:51 PM #11
rachel's daugther rachel's daugther is offline
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rachel's daugther rachel's daugther is offline
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Quote:
Originally Posted by waters86 View Post
My daughter is set to have a gastric pacemaker implanted in Dec 2012. I am looking for anyone who has been down this road!
I believe Sandy S still checks in on Facebook with some of the RSD support groups, I forgot the name but its one for parents of RSD kids. Her daughter is doing much better and is in College. She went through so much with her daughter she would have so much insight for you. Also another parent I know who 12 year old daughter Melanie had the gastric pacemaker too. She also has RSD, please try to check out FB support group.
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Old 10-03-2012, 06:20 PM #12
SandyS SandyS is offline
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Hi Rachel, thanks for letting me know on FB. I left Waters86 a post on her original post. xo

Quote:
Originally Posted by rachel's daugther View Post
I believe Sandy S still checks in on Facebook with some of the RSD support groups, I forgot the name but its one for parents of RSD kids. Her daughter is doing much better and is in College. She went through so much with her daughter she would have so much insight for you. Also another parent I know who 12 year old daughter Melanie had the gastric pacemaker too. She also has RSD, please try to check out FB support group.
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