Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-09-2011, 12:21 PM #7
Swatgen27 Swatgen27 is offline
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Join Date: Oct 2009
Location: Illinois
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Swatgen27 Swatgen27 is offline
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Join Date: Oct 2009
Location: Illinois
Posts: 114
10 yr Member
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I agree with Sandy in regards to the radio frequency nerve abluviation. Two years ago I had the RF ablation procedure and it was by far the worse treatment I have done. The procedure itself was extremely painful and you have to be awake through the whole process to make sure they are burning the right nerve. The pain would have been worth it if the procedure actually helped but in my case it caused the disease to spread. It made the existing areas that already had the CRPS a million times worse (my legs) and also caused the disease to spread into my back.
The procedure is pointless as the nerve regenerate after 6 months and in my case it came back with a vengeance. If my horrible experience helps others to not make the same mistake then at least it was good for something. Definitly look into other treatments that are not invasive (ketamine has worked miracles for many fellow CRPS patients.
Sarah
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