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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-09-2011, 06:32 PM | #1 | ||
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Hi everyone, I said I would never do it - my neuro doesn't want me to because he feels the surgery any surgery will make my RSD even worse - I honestly don't know how that would be possible.1tis so bad - pre coma status . I have been offered the coma again but am too afraid to go again - last time was just too close.
What I need your advice on is which pump and should a pain management doctor be doing the surgery. I'm concerned ( one-that he has even done it before ) and two because of how brutal he was to me during the trial. Briefly they could not get a vein for the iv he pretended he got the meds in and started the procedure - u can guess the rest he was screaming for me to shut up he lost his temper exploded etc horrible - I trusted this man up until now - how will he react to my pain following the surgery? See why I am so worried. My neuro told me my post op pain must be controlled or my body will reject this as it did my port in 05. I can not find anyone else in Orlando who does the surgery - also very few people fill them afterwards -my pm said if he does not do the surgery he wll not fill it I just can't believe everything remains so difficult! please any advice knowledge about the surgery or pain after in abdomen and any ideas on doctors in Orlando and any one know who will fill these after? I left out the best part after the horribly painful procedure the trial worked! I was 100%pain free for 20 hours!! I cannot wait to get the pump With my oral meds I always still have so much pain like the monster is just under the surface still attacking I never go below a 6- after the trial I felt like a normal person for twenty hours- no pain at all none under the surface it was amazing but it came back with a vengeance - Thanks for readig all this I hope you can help sincerely cz Last edited by CZZ74; 05-10-2011 at 08:56 AM. Reason: spelling and changes |
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