Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-09-2007, 03:19 PM #11
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Hi,

and.....her real first name wasn't Andi, either..so seems fine to me. Mike's story also serves to make us pause and ponder on the of nature of responsibilty in the online world of forums, and raises some interesting moral issues, things we all need to examine occasionally. And yes, of course if ever BT1 replaces its database the full story will be out there.

I think it's a valuable post,
all the best.
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Old 03-09-2007, 04:19 PM #12
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Hello Everyone Especially Susan,

Their is nothing we can do for Andi anymore, Mike is concerned about Susan as well.

I had Mike address this issue because I know from the bottom of my heart he is very balanced and cared about Andi. I also have a infection I am dealing with now.

But you need a Doc who believes you. If I were you I would take 2 sheets of paper one explaining your medical history, and another writing down SX.

Doing this it protects you, and the Docs have to move sort of speak. Their biggest fear is being sued. They watch their own back let's say.

I believe you are in rough shape. I am agreeing with Mike, you need a Chief of the department, or assistant head. Forget the residents, they are learning still and work for fast food wages.

Hang in their Susan. Go with your gut feeling. Hug, Roz
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Old 03-09-2007, 06:58 PM #13
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Thanks for for answering my question.
It is an important story for all to know-
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Old 03-09-2007, 07:58 PM #14
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This sharing may help even just one person..it is worth sharing. The flip side of finding help and hope.....
It is the hardest thing to live with unrelenting pain and just want some help, hope,
Death of a young person with a whole life to life is a huge loss, especially to their family left behind.

In our family it was not a suicide but a serious cry for help with mental and physical pain caused my daughter unintentional death.

If she had proper care, someone just really cared instead of medicate up, and bandaid the symptoms, with who know what reaction, she would be with me today.
Just one day after she was let home from a behavioral health center, she still had her suitcase packed and was waiting for a local center to have a bed. She knew she needed help to regain a life, to rebuild her life as best she could from the pain. She was sent home with multiple new medications including haldol, and two more psych meds , Interactions of medications caused her to stop breathing.

Far to many are lost to uncontroled pain from the shear lack of someone really helping them medically, emptionally, physically.
When the soul runs out of steam there is little else for them to draw for life from.

She suffered for 14 years of pain, she just wanted a normal life and pain to be manageable. She never got that, she never wanted death....She had so many plans for when she got help...
A loving Mommy,
Dianne
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Old 03-10-2007, 03:59 AM #15
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Thank you, Dianne,

For sharing your sorrow with us. I feel your anger, too, very strongly and understand it well. Your points are well taken, I just wish there was more that could be done for us....in time, I suppose they will look back on us, shake their heads and wish it could have been different too. But for now, we just have to fight our way through it.

Thank you also for this very beautiful phrase:
"When the soul runs out of steam"....says it all really,

all the best.
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Old 03-10-2007, 12:21 PM #16
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Dianne: I am so sorry that you lost your beautiful daughter. I know there are no words to express how I feel, so I am sending you a loving, gentle hug. Lil
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Old 03-10-2007, 11:03 PM #17
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Heart The fight

Never give up the fight, long ago at their mercy, my daughter just had no fight, no soul left.
If I could have given a transfusion of soul power to her I would have...as my hearts soul is so emense, it floods me in sorrow. I miss ehr so much but all the fight I had for both of us, it was not enough.

She no longer needs to fight her pain, but I do....the pain of a mothers loss. I tried so hard as the doctors scratched their heads...
Can our love ones give us their strength, or we give it to them when we need to draw on it too...

I have other children with chronic problems, I fear for them...
There is just no time to have to take care of my own pains nor time to heal ....
Prayers, love and emotional kindness I find through family and friends, and our forum friends.
Will it be enough?
Just never give up the fight, never lose hope, never give in.
Thanks for your kind words,
Dianne
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