[kimberlyluv]

I have been dealing with this for feels like a life time! And to not sit lay just lean over stuff with legs not on nothing just hanging! I have read alot about other people wish i could get down like others but i guess mine started little different from getting what should of been a normal shot in the hip the nurse missed stuck the needle right in my sciatic nerve then the medi she used she did not dilute it and it was like acid most doc dont use its so it fried my sciatic nerve i begged her to stop it was horri pain told her she doing it wrong but did not listen so that is why i cant sit or lay with a fried sciatic nerve that is very uncomman to happen but a doc let a unregi nurse give me the shot! That was over seven years ago i forgot how it feels to sit back and lay in a bed anything so with that happening that is what caused the rsd and cprs2 istand most the day night of course use crutches but my specialist has just retired and he was my specialist and pain doc and was going help get the stimulator i have tried go today other pain docs and they want me off pain meds we all no well ifchanges have its so bad cant bath shower get ur own clothes on sit and horri pain all day night no sleep u need pain meds but Utah is getting so bad wanting to help anyone just want to shove needles in for nerve blocks but that wont work on me because my main sciatic nerve is fried the nerve tests show its 80dama that was five half years ago started right after the injection i got! So if anyone knows a doc in ut let me know mine was one of the main specialist who studied in it at the u of u! Thanks and thanks for people being nice also! !!

[hollyk24]

Are you near Salt Lake City? If so, Omega Interventional Pain Clinic is good. I'm from Oregon, but have gone there for other treatments and the drs there know crps and can do a lot more then just nerve blocks.

[kimberlyluv]

Originally Posted by hollyk24

Are you near Salt Lake City? If so, Omega Interventional Pain Clinic is good. I'm from Oregon, but have gone there for other treatments and the drs there know crps and can do a lot more then just nerve blocks.

Yes i am close to salt lake city and my specialist and pain doc was at the u of u and he has RETIR now! And i have been paying cash three hundred at a time to other docs say going take me off my meds pain so horri not sat down for over seven years on crutches in both legs right worse cause that where got injection in sciatic nerve that fried it so nerve blocks dont work have nerve tests show nerve over 80perc destroyed and other ones we all no cant be taking off meds hate KEep paying that much to docs who wont look at ur files or tests then tell u that! What all does he do and how does he treat and does he no alot about about the rsd crips 2 Sciatica and hypersen i am still doing the calmare treatment and its killing me had five don now And have go back every day this week have no meds going nuts very depre just need some help! Thanks for replying back

[hollyk24]

Yes, he knows a lot about rsd/crps, hypersensitivity, type I and II, all the symptoms, etc. His office does meds, the typical injections, ketamine, and a bunch of other treatments. Since they are connected in a way to a research facility they are really good about being up to date about treatments. Of course, I can't promise they will keep you on your meds, but I think it's worth a shot. The staff there is really awesome too. In contrast to my pm in Portland they had a ton more treatment options that were more recent then my pm (ketamine, prialt pumps, ivig, different approach to meds). I think it would be worth your time and money to give it a shot. Dr Pulley knows quite a bit about rsd/crps.

[Russell]

I wish you well Kimberly...

[6kiddos]

I saw Dr. Pulley this summer and I loved him. He actually read my files before he saw me! Then he spent over an hour with me. If I lived in UT I would definitely have him as my dr. Unfortunately I don't live there. =( So far, he has been the most knowledgeable dr. I have seen. Good luck.

[kevingt]

Kimberly, have you tried Dr. Chalmers? He uses a non-invasive device called Calmare therapy and I've seen several positive stories about his work. He is at the Spero Pain Clinic which there is one in SLC and one in St George. Best wishes!

[kevingt]

Disregard my last post. I now see that you are trying the Calmare therapy (I should read everything before replying). I hope that you find some relief.

[Joydee]

Originally Posted by kimberlyluv

Yes i am close to salt lake city and my specialist and pain doc was at the u of u and he has RETIR now! And i have been paying cash three hundred at a time to other docs say going take me off my meds pain so horri not sat down for over seven years on crutches in both legs right worse cause that where got injection in sciatic nerve that fried it so nerve blocks dont work have nerve tests show nerve over 80perc destroyed and other ones we all no cant be taking off meds hate KEep paying that much to docs who wont look at ur files or tests then tell u that! What all does he do and how does he treat and does he no alot about about the rsd crips 2 Sciatica and hypersen i am still doing the calmare treatment and its killing me had five don now And have go back every day this week have no meds going nuts very depre just need some help! Thanks for replying back

Dear Kimberley,

I read your post only today. How are you doing at the present time? Have
you found relief, or Dr. In UtAH. We also live in Utah and my daughter also has CRPS. Did you find any relief with the calmare treatments. I noted
in your post you were trying them at the time.

I hope you are doing better.

Joydee

[kimberlyluv]

I did try the calmer treatments for three weeks! It hurt me and made me jury worse but with a doc that has never ran the machine there were people there showing them! thanks to my lawyer there is now a calmare machine in provo ut at nexus! My lawyer read about it and my doc had one delivered! But they were worried with me cause all the dama I have more then normal! Mine was caused from a injection suppo be in hip nurse missed went threw sciatic nerve and the medical also fried my main sciatic nerve so right after direct hit to nerve I could not sit or walk and on crutches and could not bend toes knee! Very uncommon for that to happen just by getting a normal shot so that also caused red cprs 2 been over seven years did treatment like said hurt me more pain was worse they tried sadate me but nothing would nock me out from all the pain so after three weeks I stopped they said would not help because my prob are worse was hoping would help so I could sit for min or lay on a bed! But it didn't I forgot how it feels to sit back or lay on a bed just stand and lean and rsd spreading other leg and arms! My other pain doc reti so still looking for doc been to alot spent alot and they just don't get it let alone understand about the injection that fried my sciatic nerve but not comman! But have every test that proves it! These new doc rules not right for the people that abbu meds for people like us that need help! But anyway the calmare I no couple people it has worked on and some rsd patients and at nexus where we put the machine if cant afford rosenthal has done half pateints for free! So joy it is worth a try for ur daughter joyde! Because it has worked on others and if live by provo like said because of my lawyer nexus has a machine now not just sl and st goerge and he does do some for free! It just did not help me I prayed it would of that is why kept going and dealing with it! But again I am still looking for a good doctor! we all no have to have some kind of pain meds mine got lowered bad until find one but atlea my family practi is helping best he can! And I finally have insurance back just media because didn't have enough credits to get medicare even though have been passed as legally disab for life "hate these crutches so tiref and run down sleep be nice less pain and maybe sit get little rest but oh well be eight years soon just hope can keep pushing threw! Good luck jodie with ur daughter hope she, can try the calmare!