Hi, I am new to the group. I had foot surgery in 12/09 and ended up being diagnosed with RSD a few months later. I have been on Neurontin, Lyrica, done spinal nerve blocks, etc, etc.
I flew out of state and had Calmare Therapy and it put me in remission. I would absolutely recommend anyone with RSD to at least look into it. You can contact me if you want to ask questions that I might be able to answer.
Anyway, that is my story. I wouldn't wish RSD on ANYONE! It's horrible!!!

Sincerely,
Allison Sutfin

Hi Allison and welcome to the group. I'm sorry you suffer from RSD and I am happy you found relief with this treatment. I did go watch the CBS or was it ABC news video on it as I always curious when anyone states they've "found a cure" like this doctor stated.

What concerns me personally is when the reporter had it done and she said it felt like when you give blood, needle draw, but if it works then I guess it would be worth the pain of that, for some.

I wasn't happy at all that they used the terms "CRIPS". I had a newbie doctor following my regular doctor on rounds one day and came into my room saying so your the CRIPS, I looked him directly in the eye and said if you ever say or call me crip again, you will be one, his eyes got so big and my regular doctor smiled so big and said oh yes, she is serious; lesson learned.

But I didn't mean to get off subject, they said in that report that insurance is not covering it yet and that it costs about 3000, did you have to pay this amount?

Please know that I am very interested and I hope my post didn't come off sounding brash, I am in a flare right now so I hesitate to post but felt compelled to.

Again, I am so very very happy this is working for you and I pray it continues to. I'd love to hear more.
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Mike: Your thoughts/research please

Dee

Interesting. I have been looking into it. My aunt had it done for trigeminal neuralgia (sp?) and it has really helped her. I know that is not CRPS but I have been thinking it might be worth a try for at least the consult. She told me that you would know in the first appt if it works for you. We will be driving () through the area where it is available and I am seriously considering at least doing the consult.

Thanks for giving your experience.

J

My daughter had Calmare and while it did not work, it did not hurt her. I have been told it will not work if you have had ketamine. I am not sure how long after the ketamine has left your system you can try it. I do know the patient who filed the complaint. Her poor daughter has many issues and she has not responded well to anything, including ketamine infusions. I too have spoken to several people who have gotten total pain relief. Facebook seems to be a good way to contact them. Spero Pain Relief (or something like that). it is also called scrambler therapy on some sites.

This poster works for the doctor who does this. Maybe it did help but it is odd to me when it is a person's first post and they are cured with a treatment and work for the person who did it

How do you know she works for the doctor? She flew out of state for treatment.

She wrote in her about me that she is working for the clinic that opening in Sacramento so maybe it is not the doctor she did it with or maybe it is I have no idea but just odd the 1st post is plugging this and she is working for them now. I think before with another type of treatment there was a post being cured from a treatment and it is was the 1st post and they end up have affiliation with the treatment in some way. Sorry to be negative just cautious.

daniella- I too am very leary of these kinds of posts and a huge thank you for being a 'watchdog" we need all of us to look out for each other. Your cautions are warranted-Fondly-Carol

My husband had an injury to his neck. He has severe pain in his left arm and back do to nerve damage in his neck.

It did not work for him. His pain went down while he was having the treatment, but as soon as he walked out the door it was back to the same old stuff.

It seems like everything I try is a quick fix for a day or so than seems to hurt worse!