thank you lori for posting that made my eye's get watery, thank you that helps me with my hubby what to say and not and more understanding. its a messed up dieaseas messed up is a nice word for it.. and it cracks your world my heart aches just reading and when reading knowing thats whats my husband is truley going thru and he does not say a word of it..

Dear Linda

you are So welcome. and I know you are already compassionate to your hubby, by his side all the way! and with all your troubles on top of his, i admire your strength and love and commitment to your marriage. I am sorry that you needed the letter that i posted. i am sorry that anyone here needs it. but whoever wrote it really nailed it on the head!

Imahotep: said it best in his thread..how can i tell anyone else what is wrong with me when i dont understand it myself!! the doctors dont really understand, no one but God understands our pain and suffering in silence!
God have mercy on us all and and save us from this debilitating disease!
lori

(some threads are worth bring back into the light) this thread and responses speak chronicles. let all who have dealt with this keep and remember this thread

Come to our meeting the first Friday inn June!' we are pretty warm blooded..lol

Debbie

i am with you all! the slightest touch, noise bump sends me over the edge latly as well, grrrrr

I feel the same way sometimes.. It's hard to stay happy when all you go through is pain, pain, and more pain. I take a prescription called Nortriptyline. (check spelling.) And not only is it good for nerves and it helps me to sleep, it's also a known anti-depressant. If you don't take it, you could bring it up for conversation with your doctor.