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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I have been there A LOT recently...so I totally know what you are going through (as I am sure most people here do). Mike's advice is great and I have found that doing those things helps me a lot. Other things that I do that are somewhat outside the box is to retreat into the things that I know bring me joy (even if doing then can be somewhat painful). For me, those things include cross stitching (which has always been my retreat from stress and one of the only things where my mind really shuts everything else away), planning vacations to Disney World (crazy...I know...but I use Disney as my motivation to get better and it really is the happiest place on earth for me), listening to my favorite books while I lay on the couch in the dark, planning all the ways I would love to remodel the house (if I had the money), etc. Sometimes these things distract me enough from the pain to get through the bad times, sometimes they just help remind me of all the good things in life, and sometimes they just help to pass the time by doing something other than just sitting there in pain.
Nothing makes the pain go away...but these things definitely help me get through the worst parts of the day. I hope your doctor is able to help you find something to help manage this pain as well. Definitely work with them to try to resolve this...but even in the best circumstances I think we all have bad days. Good luck! |
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"Thanks for this!" says: | SandyRI (05-18-2011) |
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I too understand what your going through as I am sure most everyone on the site go through it also.
Mikes advice is great as I too do much of what he says he does When my RSD gets to the point I cant handle it and none of my meds work and the breathing and relaxation doest work .I end up going to the ER. Iam lucky enough to have a wonderful hospital where my pain doctor is head of pain managment there so every ER doc and nurse know him and by now know me. He has set a protocal for me and every RSD patient he treats on the meds to use. and for me at a certain point if that too doesnt work they admit me, usually to the ICU as they put me on ketamine, and lidocain 24/7 as well as my normal pain meds but they give IV until I feel I can get off the ketamine and lidocain then I am moved to a normal room and given my IV meds until I could go home. The only reason I have to go to the ER with these flare is if not with my RSD internal if I dont get help quick enough my bladder, and stomach shut down and my blood pressure and pulse could become too dangerously high. I know not all ER's or hospitals are like the one I use as I have probably been to over 33 in 7 states and more then half are pretty bad with treating RSD patients. So I do know ERs and hospitals arents always the easiest way to go. I do wish you the, best and hoe your pain calms down soon, my thoughts and best wishes are with you! Niki1 |
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"Thanks for this!" says: | SandyRI (05-18-2011) |
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