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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Saw a new internist....I need your help please!

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Old 05-25-2011, 04:46 AM #1
gabbycakes gabbycakes is offline
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Originally Posted by lorigood243 View Post
Thank you Catra

im sorry for you too! Sometimes i think about taking a video of my self before i got sick to the doctors that i see...so they can see that i was once vibrant and strong and walked tall and was beautiful! when they see me now,
i walk with a walker on wheels, completely bent over pushing the walker along with all my weight from my upper body on the hand bars of the walker.
my stomach is enormous mostly on the right side of me. I wheeze when i walk because all the extra weight is stressing my lungs...i look like a freaky mess! how my husband kisses and hugs me everyday is unbelieveable.

anyway, thank you for your reply! you are in my thoughts too!
hugs and blessings
Lori
Hi Lori,

How are you doing? Any new developments with your condition?

My heart just breaks for you. I wish I could help in some way.

Just wanted to say hi and hope your feeling better.

Gabbycakes
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Old 05-26-2011, 05:08 PM #2
lorigood243 lorigood243 is offline
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lorigood243 lorigood243 is offline
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Hi Gabby

well as exhausted as i am by thinking about RSD and dealing with doctors...i asked my local pharmacist who is always sweet as can be to me, i asked her if she could recommend i good internist and she said do you know Dr. Rustogi, she said he is wonderful and so compassionate. i remembered his name because he was assigned to me as a hospital doctor several times over the years when i have been in. yes he was wonderful. so i have an appointment to see him May 6th. i just need some one that can connect all my dots and make sure that i am getting all the bang for my buck from the doctors i am seeing and all the meds i am taking.
so thank you all for helping me press onward and not settle for doctors with bad treatment!
blessings
Lori
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Wishing you a day of pain free movement that turns into forever!
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Old 05-26-2011, 06:55 PM #3
gabbycakes gabbycakes is offline
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gabbycakes gabbycakes is offline
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Originally Posted by lorigood243 View Post
Hi Gabby

well as exhausted as i am by thinking about RSD and dealing with doctors...i asked my local pharmacist who is always sweet as can be to me, i asked her if she could recommend i good internist and she said do you know Dr. Rustogi, she said he is wonderful and so compassionate. i remembered his name because he was assigned to me as a hospital doctor several times over the years when i have been in. yes he was wonderful. so i have an appointment to see him May 6th. i just need some one that can connect all my dots and make sure that i am getting all the bang for my buck from the doctors i am seeing and all the meds i am taking.
so thank you all for helping me press onward and not settle for doctors with bad treatment!
blessings
Lori
Hi Lori,

So glad to here you got a good recommendation. Pharmacist know the best doctors.

Please keep up posted and enjoy the long weekend.

Gabbycakes
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