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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Hello
i have abdominal RSD caused by gallbladder surgery and abdominal surgery i had. i have had RSD for 6 years and gasteoparesis for at least 5 years. i was on Reglan for about 4.5 years. i started seeing commercials on tv about getting the disease in this ad. http://www.rxlist.com/reglan-drug.htm so when i realized that i had one of the symptoms, i stopped taking the medication and that was about a year ago and the symptom has gone away. it didnt work that great for me either. I take Fenergan for nausea problems and that works great. I also take over the counter Prilosec to help empty my stomach..that works well too. BUT i cant eat after about 7:30 at night or i am in big trouble. i get horrible acd reflux late at night that has e gagging and puking and on top of this i am asthmatic. so when i get the acid reflux, and it gets in my lungs it aspirates in my lungs and i cant breathe. so be very careful about eating at night. hope this helps someone! Lori QUOTE=firegirl;773150]I have RSD as well as gastroparesis. My doctor told me to start taking Reglan for nausea/vomitting. Has anyone else taken this med. If so, were there any problems such as tremors & did it help. I know many others with RSD have gastroparesis. Thanks!![/QUOTE]
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Wishing you a day of pain free movement that turns into forever! |
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#2 | ||
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I was told that if you have any neurological disorders that Reglan can not be taken. That is why they didn't put my daughter on it.
Lindsay's pain management has said that she is seeing more and more gastroparesis in RSD patients. But I have not heard that it is RSD in the stomach. Scary though. But, the pacemaker is working. Quote:
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#3 | ||
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thank you for your information.. Exactly and right on about the Reglan as a side effect of the drug is irreversible tremors.So neurological patients should not take it. My family phys. Gave me this medicine but My GI phys is not happy she started me on it. he said to take it but they will stop it for a month after taking it for two months period of time. My GI Dr. Also started me on Clindex also...height are the magic pill for my gastropharesis.... I am so happy Lindsay is doing well.... Hugz, Kathy ![]() |
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"Thanks for this!" says: | SandyS (05-28-2011) |
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#4 | ||
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Thank you Kathy, have they mentioned the pacemaker? It is really making a difference.
thank you for your information.. Exactly and right on about the Reglan as a side effect of the drug is irreversible tremors.So neurological patients should not take it. My family phys. Gave me this medicine but My GI phys is not happy she started me on it. he said to take it but they will stop it for a month after taking it for two months period of time. My GI Dr. Also started me on Clindex also...height are the magic pill for my gastropharesis.... I am so happy Lindsay is doing well.... Hugz, Kathy ![]() |
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#5 | ||
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So I started taking the Reglan & only made it a few days. Hadnt even given it time to work yet really, but had to stop. I started getting severe jolts & twitching so my doctor had me quit taking it.
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#6 | ||
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Quit the Reglan. Was hospitalized & docs switched around all my nausea meds. They mentioned the gastric pacemaker, but I was unsure if I wanted to risk it or not. I have a good friend that is a GI nurse & she said any abdominal surgeries that are not immediately life threatening are a bad idea....too much scar tissue. She said their patients that have had surgeries are always in & out hospital w/ ongoing complications. Just scares me!!! Glad it has worked for some though!!
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#7 | ||
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Hi,
I believe I have posted on this thread before. My 18 year old daughter had the pacemaker put in in April...I have to tell you that it was the BEST decision that we made for her Gastroparesis. She is thriving, eating what ever she wants and has gained weight. No Nausea or vomiting. Yes, I will tell you that the recovery process was hard...But the outcome has been so unbelievable. She has her life back. Yes the RSD caused her pain from the surgery but she would do it all over again tomorrow. If you have a facebook you can go to a page for gastroparesis and there are several people there with the pacemaker. Don't say no to it. Do your research it has worked for so many people. There are many that do the pacemaker laprascopic. If you need more information I can send you some. Sandy Quote:
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