Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-28-2011, 07:05 PM #1
keep smilin keep smilin is offline
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Join Date: Aug 2009
Posts: 851
15 yr Member
keep smilin keep smilin is offline
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Join Date: Aug 2009
Posts: 851
15 yr Member
Heart

[QUOTE=cndangel;774428]I think it is almost impossible for anyone to understand the pain and limitations we go through on a daily basis. I know even I struggle with it. One day I can do a task the next day I am unable too. One of my biggest struggles have been learning and accepting my limitations I now have.

I know I found myself saying why can't I just do this or that and felt deflated when I was unable to do the thing I wanted. May it be taking my daughter to the park or even going for a small walk around the block. It felt like I was not able to do anything at all and why bother trying anything else.... but I am learning that yes, I may not be able to do what I wanted that day...but it does not mean I can't do anything at all. Instead of going to the park maybe I can manage to set up an obstacle course in my living room for my daughter and I can watch and cheer her on... or instead of that walk I so wanted...maybe I can sit on my front porch and still get the fresh air I wanted and enjoy the
nice weather.

I guess my point is that your daughter needs to understand that maybe you can not do the things you use too...but instead to appreciate the things you
can do. Depending on how old the grand baby is... maybe you can read a
stories over the phone to them when you are unable to visit? Or now a days
even skype to them. Just let her know you are doing the most you can do with the limitations that are there for you and those good days that you are
able to do more... you will.

We may not have the life we want...but that does not mean we still cant have a good quality of life for ourselves! Don't let your limitations make you
think you are not holding up your end of being a good grandparent...as I am
sure you are a wonderful one.... just when we are faced with limitations we
are we just have to be a bit more "creative" to achieve some of the things we
would like to do.

Take care,

Wanna hear something funny?...Oh btw... Your bestest buddy card I sent you...well, just so you know..I got that and sent it bf I got myself in the dog house...timing just worked out that way...good think huh?

Karen

[Quote]

Dear Cindi,
I had a real pretty reply going out to you this morning... My suggestion was also using the skippe on the computer.... And never worry as this is such a double edged sword with our loved ones...as they have trouble admitting to our illness cuz their hearts won't let them... We have to hold in there together
and share small doses, often of our world with them... None of this is nice for us or them.... You are in my prayers....

Hugz, Kathy
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