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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Guest
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Yup, bout time we heard it for the guys.......GO GUYS!!
![]() and welcome Bassman! Good to have you here, all the best! |
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#2 | |||
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Junior Member
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I started reading this post and responding because I thought there was a need for some genuine support.
I cannot believe that the doctors give y’all this kind grief. It mentally makes sense, but it is quite appalling. The more of you that post, the more that I am angered!!!! I am not real trustworthy with doctors to begin with but I am a small petite woman and in some cases, especially with doctors that know me, I have not had any major problems. I did in the beginning arm myself with knowledge, just to be prepped to fight with them. Lucky for me, all my doctors at least have heard of RSD and know to be careful touching and turning. It breaks my heart that y’all have to fight harder just because you are men and are expected to put on that brave face. This is Crap! Plain ole' Crap! All I can say is try to arm yourself with knowledge, fight them with brains. Take information that proves that this illness, cause more pain than most people experience in a lifetime. Gentle Hugs, Rain ![]()
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#3 | ||
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Guest
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Dear Mark,
I posted this link before. If your up for it, maybe you could take the time to read it. http://www.rsds.org/4/stories/ben_lynch_speech.html Love, Roz ooooo |
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#4 | |||
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Member
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true actually... that does really suck - the perception that being a big guy means you are "strong", "brave" and other labels (which in turn suggest that you should just "put up with it!). But at least you aren't female (youngish female) and thus automatically neurotic... EVEN when the drs agree that 100% is physical!?!
The whole labelling thing sucks - especially with RSD! It is either a psych issue, a weakness issue or some bizzare type of gain......... Rooting for you all! This IS unfairt treatment! How about taking a sexism case to court?! Love ya all FRxxxxxxxxxxxxxxx
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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#5 | |||
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Magnate
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It's too bad that you not only have to go through the pain you go through and then see those words on your medical records.
I wonder at times if it's the fact that these Drs. don't know what to do for CRPS patients that makes them make the patient look stupid to keep them from looking more stupid then what some of them are. I know before I was diagnosed with TOS and RSD I was in so much pain I was suicidal, even more so then what I am today. I got so mad at my Dr. at one time I asked him if it was a woman thing. He told me not to even go there. He was pulling his hair out trying to figure out what was going on with me and he was sending me out from Dr. to Dr. to get my Diagnoses. It took me over 3 years to get my diagnoses. He was stumped as he had only had one TOS patient in his 20+ years, the same with my PA. For him to say what he did in your paperwork makes me believe that he didn't have the knowledge to diagnose you so he just turned the tables on you to make him look less stupid. It took a hand surgeon to diagnose my RSD after I had seen Neurologist, PM Drs., TOS drs, and Rheumotologist. It has to be a special Dr. I think to be able to diagnose RSD. There seems to be so few Drs. in any field that knows anything about it. We all know our body, we know it's not in our head, why does it take so long to get that CRPS diagnoses. I bet you are right though about men. The Drs. most likely think that men are the strong ones that can deal with anything. It's so wierd to see both sides of the fence. The way that men are treated and the way women are treated. Don't let those words get to you. Don't loose any sleep over it, it's just one Dr. or so called Dr. anyway. Ada Ada |
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