Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-10-2007, 01:03 AM #6
Auberon Auberon is offline
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Join Date: Feb 2007
Posts: 62
15 yr Member
Auberon Auberon is offline
Junior Member
 
Join Date: Feb 2007
Posts: 62
15 yr Member
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Thanks for the understanding all.

For Tayla, I am on the outskirts of Sydney. My GP is wonderful but NSW Health limits what he can do so I am stuck with a Pain Specialist.

The thing about it being in your head is intriguing and puts the doctors on shakey ground. It is worth haviing a look at the work published in the Journal of Pain by Massechuesets General Hospital (Feb 2006) that proves quite a number of nociceptors in the affected area are dying. The pain is REAL. It has a real cause.

Have been to doctor after doctor for the insurance company; They ALL agreed that I have a serious case of the CRPS (displaying nearly all of the clinical signs and symptoms all the time). They cannot treat me as they have worked for the insurance company in a medico-legal sense.

Unfortunately the treating doctor is the obstacle.
The current treating specialist power dresses and has his office set up so you cannot view his face easily. Uses the classic interrupt when questions are raised and cuts short the consultation - I am an easy physical and mental pushover since CRPS grabbed me.

As an idea the orthopaedic surgeon immediately post-operatively told me to throw away my crutches an just walk.

I have tried 3 specialist pain management facilities in Sydney and all have put me in the too hard basket.

One single type of medication helps and allows "some" function but my specialist won't titrate the dose to see what quality of life I might achieve. I have so far demonstrated no side-effects. This must be initiated through a hospital or pain specialist.

I just want a little bit of my life back.....you all know.... being able to hug my wife.....carry on a conversation without losing track when the pain score flairs to a 10/10.....it is hard enough to speak fluently at a 7/10 (normal).

I truly appreciate the in-absentia and gentle hugs they do help. So even though I am new to you all.
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