Mike, just wanted to thank you for ALL you are doing for those of us who suffer from a disabling disease such as CRPS, especially when it comes to tolerating air transportation. I've flown a number of times after being diagnosed with CRPS with minimal lasting physical effects. However, just returned from vacation - only 3-hr. flight. Upon descent, this deep, slicing, horrific pain started in my abdomen and by the time we landed, engulfed my total body in excruciating pain. I could barely get out of my seat & bit my lip to keep from screaming. I cried all the way home praying it was temporary, but it progressed.

Immediately, scheduled an appt. with my pain specialist MD for a SGB to the rt arm the next day. Received that and will start with another block to the rt leg & foot, followed every other week by further blocks until some type of pain control can be achieved. I Praise the Lord these blocks do work for me. However, my neck and head discomfort are totally new!

I'm supposed to be flying again in Oct. and am scared to death, but with your influence with the TSA Dept., maybe I could at least look forward to a very light pat-down. Thanks for your continued support and for providing TSA with some very vital health info. about a disease that's not recognized or acknowledged.

Keep up the good work & God Bless You!

Sherry

Just a side note to maybe brighten your days..

two years ago i was flying with my partner who has rsd upper left side and left hip. she always uses a can and slide on shoes and since we travel frequently we have our routine down to a science. for some reason this one day they helped her through the metal detectors, and even though she didn't set them off they still decided to do a pat down. she was already feeling awful and when the gentleman went to pat down her arm i lunged forward and yelled 'no! wait!' and every TSA agent and passenger stopped and stared!! the guy stopped and i stepped backward out of the machine and kept apologizing... but the guy did too!!! he asked if she could just roll her sleeve up and everyone was actually really nice because i was convinced i just got us arrested. he had someone else take over and helped her sit and got her cane for her! it was great to see! this was JFK around 5am

(especially bc now with the full xray machines she can't hold her arms up to we usually end up staring at our carry ons for 45 minutes on the other side of the belt and waiting for someone to come over for the pat down)

I'd also like to add she recently has an IME and i ended up having to physically push the doctor off of her after she asked 5 times for him to stop and almost passed out. guess i'm still a little traumatized after that one haha