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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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I dont know if this helps, but I have an eye disease of my cornea that disenegrates it and I see double vision and have sensitive eyes majorly and just weird symptoms... its called kerataconus. On top of that when I look straight one of my eyes is looking a little up and one is looking down, so all day my eyes have been fighting to focus on one spot and they put prisms in my lenses.... I dont know if this might help? But I have eye pain 24-7 for 10 years now and I am only 21... so I definately feel your pain... I dont know what single vision even is. Double vision is the way I live my life. I tend to not go out during the day as much as I could because of the sun, and in the house my tv is dimmed and computer is dimmed, and all the lights are off.
Try turning lights off, and keeping everything dark, turn down the tv contrast so its not as bright, turn down pitch on the volume... too much sensory overload makes everything worse. When I got RSD all the sensitivity got alot worse. Hang in there.... |
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#2 | ||
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Magnate
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Teen I am sorry you ended up in the hospital. When is your neuro apt? I would keep calling for a cancelation to get squeezed in. I agree it is important to rule out other conditions. I always fear I will brush something off as rsd and it be something different. Did they discuss maybe a med that is used for migraines? Hope you feel better
Hannah I can so relate as I tend to not go out in the sun much from my eyes too. I made my bedroom into a dark room with the black out shades. Now my ears seem to be similar to my eyes |
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"Thanks for this!" says: | hannah1234 (07-22-2011) |
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#3 | ||
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Junior Member
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My eyes seem to be getting worse with the progression of RSD. The eye on my left side ( worst side) twitches constantly now also. When I had my SCS implanted it made it much worse, had a hard time even watching TV. For other reasons I have had to leave the stimulator off, but my vision still remains shaky and strenuous.
I also find sensory overload to make my pain worse. Dark quiet rooms, focusing on breathing, is where I find my most relief right now. Wish you all the best.
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Eli . . |
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#4 | ||
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Junior Member
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I have recently started having a more difficult seeing. Problems with double vision and a sense of vibrations behind my eyes. I did not realize that others with RSD were having the same issues. Who is it better to address the issue through, your pain doc or eye doc? Hope you are getting so relief!
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Eli . . |
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#5 | ||
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Magnate
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Newly Joined
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#7 | ||
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Junior Member
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Might want to do a google search for neuro-ophthalmologists in your area. Is it RSD or myasthenia gravis or any number of other things.
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