Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-24-2011, 02:50 AM #1
daniella daniella is offline
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I don't have double vision but have major eye problems and pain. Were talking 50 apts and 10 eye specialists plus neurologists etc. It is hard to find a doctor who connects the eyes with rsd but it seems common that people with rsd have eye problems. I have heard others mention double vision. Some videos I have seen for ketamine infusions etc the patient is wearing sunglasses cause of eye problems.
For myself I hope one day if my rsd limb pain gets better that what ever treatment is used for that will also help the eyes.
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Old 06-27-2011, 07:23 AM #2
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Originally Posted by daniella View Post
I don't have double vision but have major eye problems and pain. Were talking 50 apts and 10 eye specialists plus neurologists etc. It is hard to find a doctor who connects the eyes with rsd but it seems common that people with rsd have eye problems. I have heard others mention double vision. Some videos I have seen for ketamine infusions etc the patient is wearing sunglasses cause of eye problems.
For myself I hope one day if my rsd limb pain gets better that what ever treatment is used for that will also help the eyes.
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
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Old 06-27-2011, 03:58 PM #3
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Originally Posted by teen1976 View Post
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike
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Old 06-29-2011, 12:06 AM #4
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Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike

Mike, it's more than that. There are various sympathetic inputs to the eye. There are cases of essentially burned out lacrimal glands leading to chronic dry eye causing visual distortion as a result of CRPS. I personally have significant visual issues after stellate blocks. There is more to this than meets the eye...:
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Old 07-16-2011, 06:52 AM #5
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[QUOTE=fmichael;781903]Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike[/QUOTE

I wish I could blame medication, due to awful reactions to meds I am having to live with the condition without anything at the moment, which as I'm sure you know is quite tough. Thanks for your input.
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Old 06-29-2011, 12:14 AM #6
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Quote:
Originally Posted by teen1976 View Post
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
Have you been to a neurologist? After my many eye specialists I went back to my neurologist who did an mri of my brain again and ear. I was having ear pain that goes into the eye. Also you could think of seeing a neuro opthamologist. I do have a dx of dry eye and bleph but all the doctors I have seen say my pain etc is too high for that to be it. I have tried so many meds,plugs,draining I could go on and just made me worse so I am very careful of what I allow now done to my eyes.

Feel better all
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