[RSD_Angel]

OK,

I am supposed to be going in for the trial and implant of the pain pump in April.. april 23rd, and my doc wanted me on a steady dose of meds so that when he puts the pump in that he could figure the meds out correctly.

he has me on MS Contin 15mg 1 twice a day... I have been taking them and for the past 2 weeks my legs have been killing me.. and i called him to see if i can bump up my nite time dose and take 2 at nite.. bc they arent working and its like takin candy.. which it is, but have never taken 2 at a time ... soo maybe that would work.. well i called him on tues and never got a call back and so i called back today and his receptioist said that he said no, that if i take them now and its not workin then bumpin it up wont do anythng..

I am just caught bc the pain is strong and I hve always been able to handle it, but konwing that the meds he has me on pre pump arnt working,,,, what is it gonna be if i go through wit the pump ??? Plus i have that rashy thing that i posted a couple weeks ago.. its not as bad as it was back then but still there and still hurts too.?? So i told her that i want an appt with him bc i cant hang on and do nothing till i get the pump and if he told me it wasnt worth taking the ms contin, then what about the pre meds for the pump??? GRRRR>. i want my fentynal patches back .. i have them but im allergic to the adhesive in the sticky part... i give up...lol.

SO if any of you guys out there have any suggestions.. everything is welcomed.. I spent 3 hours in the hot tub last nite just so i could get some sleep.. it was 3 degrees out and i think thats what is messing with my legs, but???


~~Angel

[WickedGood]

I too take the Morphine Sulphate. I take two at a time. 30mg is my dosage per tablet. It works real well for me and the only annoying side affect I deal with is major cotton mouth. Imagine finally finding something to shut me up! But than again that is me. Each of us are different. Your Doc must be saying no for a reason. I wish I hadn't fallen down the stairs the other night cause that's when I broke my magic wand. Or else I would be more than happy to wave your pain good bye!!!!

Seriously my dear MS Contin is a tricky little sucker. It works differently for each of us. I really do wish I could offer you a solution. In the meantime I hope you find comfort and relief. Chin up!! Mark xoxo

[Diamond Lil]

Amber: I am so sorry you are having so much pain. When I was on MS Contin, I took 45 mg two times a day. I am not a doctor but it seems 15 mg two times a day is not enough to help you. Is there such a thing as fentanyl cream that you could use, thereby eliminating the adhesive? Ask your dr. if that would work as a substitution. I hope you feel better soon. Regards, Lil

[RSD_Angel]

Thanks Lil and Mark... I know that MS Contin can be tricky... its just soo annoying... ok annoying wasnt my first choice of words.. but you know were i am comming from..

I dindt know that Fent. came in a cream!! i will be asking him about that when they call with my appt.. i heard that there are fent. lolipops too!!

Thanks again guys.. love ya alls!

~~AMber

Hey Amber,

This forum is always worth searching; here's a whole thread about the patch, allergy to the adhesive, etc. etc......
http://neurotalk.psychcentral.com/sh...ad.php?t=11132

Hope you get this sorted out, does sound like the doc is being ultra-cautious; what can you do, they always seem to either under or over medicate ?

all the best!

[kejbrew]

Amber,

That is a very sorry excuse for your doctor to say, "if the medication isn't working now, bumping it up won't do anything." As a matter of fact it is little more than an outright lie if you are not given the opportunity to try a higher dose to see if some additional relief is achieved. Plus he didn't have the nerve to tell you himself.

You need to look that Dr. in the eye and tell him that you are not satisfied with that weak excuse. Better yet, ask him how long he has been able to see the future. It is obvious that he is giving you a brush off answer.

One of the most valuable lessons that I have learned through dealing with this RSD monster is that you absolutely must take a stand when necessary with medical care providers. You are owed fair treatment, after all you are the one in pain not him. Insist on better care and don't accept less!

I'll stop now that my pressure is soaring out of control. I just don't like seeing people taken advantage of. Grrrrrrr!

[tayla4me]

Amber,

Unfortunately it is important to get all meds down to a dose that will allow your doctor to more efficiently titrate your intrathecal dose once your pump is in.
To some extent when your doctor said what he said about not increasing the dose is correct as our bodies just become tolerant to them. It seems as though our pain is increasing where in fact it is just that the same amount of drug we are used to is just no longer useful.
This is when there needs to be an alterative or a complete change in medications. I certainly don't mean that we should not stop trying to find pain relief but there is no point in taking huge amounts of something that no longer works.
I hope that you will be able to find something that will get you through, this is where Ketamine would really be wonderful for you! Is it a possibilty for you ?
Tayla