Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-20-2011, 08:35 AM #6
Jimking Jimking is offline
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Join Date: Mar 2009
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Jimking Jimking is offline
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Join Date: Mar 2009
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Quote:
Originally Posted by cindi1965 View Post
Birchlake, I have Senator Jay Rockefeller office working for me too. The only reason I didn't get it the first time was because the Doc that has been treating my Cerebral Palsy didn't send in my medical records. I fixed that since I my first denial. The lady I had my phone conference with said that the more medical records I could get sent in the better and I am pretty sure I have them all. I am lucky(if you can call it that) to have a dual diagnosis of CP and RSD/CRPS affecting the same body part....thanks for the encoragement!
That's very good news that you have a Rockefeller on your side. Our Congressman, Gerald Connally here in Virginia, worked hard on Suzy's case and also helped us keep our home in which we where two payments behind. We lost our insurance too and can sympathize strongly. We were sinking fast with these out of pocket costs. I'm a full time worker by the way, but we were saved and so will you. Very quickly after Suzy was approved last Nov. she was able to access medicare....very quickly.
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cindi1965 (07-21-2011)
 


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