FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
07-26-2011, 06:35 PM | #1 | |||
|
||||
Member
|
Let's share our painful areas for today 7/26...I'll go first...
I am having skin pain and burning on my thigh where my MRSA was (the reason why I have RSD) and deep bone pain in my left thigh... Anyone else want to share? |
|||
Reply With Quote |
07-26-2011, 07:32 PM | #2 | ||
|
|||
Guest
|
I have RSD and pain caused by RSD in my left knee/leg. I also have Central Pain Syndrome in the same areas because of my RSD.
|
||
Reply With Quote |
"Thanks for this!" says: | cindi1965 (07-26-2011) |
07-26-2011, 09:00 PM | #3 | |||
|
||||
Member
|
So sorry Kitty....I see you just joined us last month. I have had RSD/CRPS for 3 years now without much success of treatment. I was born with Cerebral Palsy, so having a dual diagnosis is troubling to say the least. I am just now learning how to live with RSD. I found that if I fought or stressed about it, it was just getting worse.
You will find the sweetest people EVER on this board and if I hadn't found this board, I don't know where I'd be...good luck and we are always here for you |
|||
Reply With Quote |
07-26-2011, 09:46 PM | #4 | ||
|
|||
Junior Member
|
My RSD pain has spread as of today from my shoulder, down to my left hand, up to my neck, and down my spine across my lower back. Varying areas of pain from stinging hot needles to deep bone pain.
Oh RSD, you suck.
__________________
Eli . . |
||
Reply With Quote |
"Thanks for this!" says: | cindi1965 (07-27-2011) |
07-27-2011, 07:32 AM | #5 | |||
|
||||
Member
|
It certainly does suck!! I just got up and I have a NEW one today....because I cannot move my toes well, when I got out of bed this morning my whole foot cramped up and I couldn't walk to the kichen! Oh, it REALLY sucks today!!
|
|||
Reply With Quote |
07-29-2011, 05:51 PM | #6 | ||
|
|||
Guest
|
Thank you so much, Cindi! Your kind words really touched my heart!
My RSD, which was causing SMP (Sympathetically Maintained Pain) is now causing SIP (Sympathetically Independent Pain). This is the reason why my anesthesiologist said my pain had "centralized". According to him, I now also have Central Pain Syndrome! One more chronic pain condition to deal with, added to my RSD, osteoarthritis, etc. I hope your RSD pain will never centralize! It is already not fun having RSD and its pain in an extremity; if the pain has to be in the spinal cord, in the brainstem, and in the brain because the pain became centralized, it is worse because, from there, it could spread anywhere in the body! My anesthesiologist finally admitted the truth to me because I prefer the truth, even if it is bad, than lies or hidden truths! Thanks again for your kindness, Cindi! You made my day! |
||
Reply With Quote |
"Thanks for this!" says: | cindi1965 (07-30-2011) |
07-30-2011, 05:06 AM | #7 | |||
|
||||
Member
|
Quote:
|
|||
Reply With Quote |
07-30-2011, 05:12 AM | #8 | |||
|
||||
Member
|
Oh BTW, it's been raining here off and on all night, so I have the wonderful "entire leg" thing going all...all the way to my toes! I am getting ready to start a video blog or Vlog and make daily entries to show people how crazy this whole thing is...I'll let everyone know when it's up
|
|||
Reply With Quote |
07-27-2011, 10:11 AM | #9 | ||
|
|||
Member
|
Quote:
Deb |
||
Reply With Quote |
08-01-2011, 07:36 AM | #10 | ||
|
|||
Member
|
I have had RSD/CRPS for about 2 years now. It started when I broke my right elbow and lost the use of my hand and arm for 8 months. In the last two years, I feel as though I have aged about 50 years. In the last six months, it has been the worst. I have trouble walking. Was told it wouldn't spread, but I have deep pain in my hips when I walk, and pain in my knees, ankles, and feet. It is the worst when I first get up in the morning. I feel stiff and walk like a penquin half the time. Maybe I should just buy a tux and accept my fate. Ha! I am trying to lose weight and am going to my chiropractor again. Am allergic to all pain meds tried. In spite, I feel blessed. Concerned, though, cause will be doing alot of walking this summer when go get my son at Marine OCS. Praying that I can get around ok. =)
|
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Can you share advice on my painful legs? | Multiple Sclerosis | |||
Painful day | Spinal Disorders & Back Pain | |||
Painful dystonia | Parkinson's Disease | |||
EMG/NCV - was yours painful or not | Thoracic Outlet Syndrome | |||
Many of us share a history. Should we share some historical postings? | Parkinson's Disease |