Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-08-2011, 10:02 AM #11
keep smilin keep smilin is offline
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Originally Posted by gabbycakes View Post
Kathy,

Good luck at the GI Doctor. I hope he has some answers for you.

gabbycakes

thank you Gabbycakes... So nice to hear from you...

I have just returned.. The Dr. Has added another medicine, 3 meds now for my tummy.. previcide for acid control..I also take Reglan for lack of motility and chlordiazepxide for spasms. darn ole internal RSD!!

Together we will see this thru....I m so appreciative of your thoughts!!

Hugz, Kathy
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Old 08-09-2011, 10:11 AM #12
SandyRI SandyRI is offline
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So sorry Kathy. When was the last time you appealed ketamine treatments with your insurance company? Stay on it, maybe you will find that your insurance company has changed its position.

I truly hope you can get this resolved soon.

I am keeping you guys in my prayers. xoxox Sandy



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Originally Posted by keep smilin View Post
Thanks everyone for your kind words and suggestions...I know, right Cindi?!?!? Iam a cold turkey RSD Medicine girl as I naturally have a sensitive tummy to pain meds so far... As far as the infusion, Ketamine.. That is not possible as my insurance will not cover it...Hannah, I do the same thing...I think real heard in my head that it passes or it is something other than RSD... Ok..I ll try the gag procedure..and I find Root beer does help, not sure why...makes me belch like crazy...it been protein shakes lately..I have an appt. With my GI Dr. This morning, hopefully he can prescribe something...Previcide...I'll let you know what turns up, I know bad choice of words!!


You are all so gracious...and wonderful...

Love, Kathy
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Old 08-13-2011, 06:39 AM #13
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Dawn, Kathy: UGHHHHH I am kinda upset that I am not the only person that gets this . This means its another thing that is part of it. i have no idea what to even do anymore. Is there anything that helps? I have been on topomax for 3 years and this has just started within the past few months. I was at physical therapy and I got hiccups so badly the therapist was like I have never heard hiccups so bad... They are so painful, and I get acidy in my mouth from them being so hard. So frustrating. Let me know Kathy how you are doing with the meds if its helping. I dont know if its even worth to bring it up to my doctor?? I feel like I just get sent off to specialists for everything and I can only afford so much for them to tell me what I already know... baaaah. so frustrating!
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Old 08-13-2011, 08:44 AM #14
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Originally Posted by hannah1234 View Post
Dawn, Kathy: UGHHHHH I am kinda upset that I am not the only person that gets this . This means its another thing that is part of it. i have no idea what to even do anymore. Is there anything that helps? I have been on topomax for 3 years and this has just started within the past few months. I was at physical therapy and I got hiccups so badly the therapist was like I have never heard hiccups so bad... They are so painful, and I get acidy in my mouth from them being so hard. So frustrating. Let me know Kathy how you are doing with the meds if its helping. I dont know if its even worth to bring it up to my doctor?? I feel like I just get sent off to specialists for everything and I can only afford so much for them to tell me what I already know... baaaah. so frustrating!

Hello Hannah,

I believe I have good news to share with you, well at least about controlling the burning pain...acid! Ouch... I did go to my GI Dr. Last Monday...barely could keep my head up from the burn...He started me on omeprazole, generic for previcid...40mg,1x daily for the acid burning..which I have to say has helped a bunch...I have taken it twice a day if I find the burning creeps up on me...He said to continue the Reglan for motility issue and Metroclopramide for tummy spasms.. The motility issue is still present and I find root beer to help me burp and send things along...These tummy issues are part of our big picture..they are not nice! I'm up and down with my weight..usually 5-7 lbs down then back again... Your hiccup issue sounds much like a diaphram disorder or RSD...Key thought would be keeping your diaphragm quiet as possible...as to avoid spasming of your diaphragm..possibly my anti spasm medicine would work for the diaphragm? Worth checking into...

You my dear have my sympathy...I hope this helps you in a good way...Please, let me know how you are doing!!

Hugz, Kathy
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