Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-09-2011, 04:33 PM #11
betsykk betsykk is offline
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I remember a doctor in NYC calling me about brain stimulator treatments. I forget the hospital but it was some sort of study but would involve us paying for a hotel room up there. We ended up doing ketamine instead. I wonder if this is the same therapy...can you tell me the hospital where they are doing this?
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Old 08-09-2011, 05:23 PM #12
firegirl firegirl is offline
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Quote:
Originally Posted by betsykk View Post
I remember a doctor in NYC calling me about brain stimulator treatments. I forget the hospital but it was some sort of study but would involve us paying for a hotel room up there. We ended up doing ketamine instead. I wonder if this is the same therapy...can you tell me the hospital where they are doing this?
Its a hospital in South Carolina. I believe there is only one doc in the hospital that has experience with the brain stimulators. I would much rather try the ketamine, but even if Medicare covered it, I doubt I could come up with the travel money.
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Old 08-09-2011, 06:55 PM #13
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My primary doc spent an entire hour today going over the recent new stuff. He agreed that trying the Opana instead of Oxy was worth a try. So, as soon as I hear from the insurance company about the appeal for them not covering the Opana, I will give it a try & see how it goes. Really hope they decide to cover it so I can give this a try. Otherwise I will have to come up with a new plan I guess. I have officially signed over my pain med responsibilities to this new pain mgmt. doc so I hope he turns out to be good!!! Time will tell I guess.
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