Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-14-2015, 07:05 AM #9
LIT LOVE LIT LOVE is offline
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Join Date: Mar 2010
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LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
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I have temperature regulation dysfunction in both hands and feet, even though the severe burning pain is (usually) just in my dominant hand. Sometimes both hands will get ice cold, or my right hand and left foot, or both feet, etc. Warm water with Epsom salts works best for me. Using an infrared heater seems to help as well.

UNCERTAIN,

When your pain increases, are you "guarding" your hand to protect it?

I developed a habit of guarding in the first few years that ended up causing all kinds of problems--the pain travelled up my arm, to my elbow, to my shoulder, to my neck, and down my back. It also caused my hand to atrophy.

With the help of a pain psychologist I was able to break the guarding habit, but it had become so second nature that it was not easy--a big understatement. I still have the lingering issues with the pathway to my back, but they are much less severe than they were. My back will still get random muscle spasms and being in warm water helps, if things get out of whack enough I schedule a series of massages and have needed trigger point injections (I believe that's what the doc called them?) as well. Lidocaine patches can help, and sometimes I use Epsom salt cream if taking a bath or swimming is not an option.
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