Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-19-2011, 12:39 PM #1
janejane janejane is offline
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Default Vitamin C and Mirror therapy really work. Try them!

Hi! Just wanted to tell you all of two things that have helped me a lot.

Vitamin C intravenous infusions are wonderful!!!!!! They truly stopped my pain from spreading from my foot to my ankle after I twisted it. I swear by them and there has been lots of research. If you go to google scholar and then type "vitamin c rsd" you will find some of that research. I asked my doctor how to find other practitioners who do vitamin c infusions. He told me to go to the American College for Advancement of Medicine's website or to call them to find out where those doctors are. I use my cell, and I couldn't find the info from my cell (I can't sit at the computer, I use my cell) but it's supposed to be there.

Second, I have tried mirror therapy for the past days, slowly, and it really is working in helping me move my foot more. I am so exicted. Here is a link I found on youtube on how to do it:

http://www.youtube.com/watch?v=FM1DKhKehfI

Good luck to all!!!!!!!
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Old 08-20-2011, 12:41 PM #2
nyt2 nyt2 is offline
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Quote:
Originally Posted by janejane View Post
Hi! Just wanted to tell you all of two things that have helped me a lot.

Vitamin C intravenous infusions are wonderful!!!!!! They truly stopped my pain from spreading from my foot to my ankle after I twisted it. I swear by them and there has been lots of research. If you go to google scholar and then type "vitamin c rsd" you will find some of that research. I asked my doctor how to find other practitioners who do vitamin c infusions. He told me to go to the American College for Advancement of Medicine's website or to call them to find out where those doctors are. I use my cell, and I couldn't find the info from my cell (I can't sit at the computer, I use my cell) but it's supposed to be there.

Second, I have tried mirror therapy for the past days, slowly, and it really is working in helping me move my foot more. I am so exicted. Here is a link I found on youtube on how to do it:

http://www.youtube.com/watch?v=FM1DKhKehfI

Good luck to all!!!!!!!
Thanks for the link for the mirror box therapy. I just asked my pelvic pain specialist about but he was not aware of anyone in our area that could work with me. How does one do this if you have RSD in both of the lower extremeties?
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Old 08-20-2011, 04:23 PM #3
Jimking Jimking is offline
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Originally Posted by nyt2 View Post
Thanks for the link for the mirror box therapy. I just asked my pelvic pain specialist about but he was not aware of anyone in our area that could work with me. How does one do this if you have RSD in both of the lower extremeties?
RSD is a very strange condition, what works for one makes another worse. My wife tried (who has RSD) the mirror therapy and caused her immediate pain in her arms, why I have no clue. At the time she had RSD in her right arm, now she has it in all her limbs. Mirror therapy originated with those with phantom pain, those with missing limbs who felt severe pain in a limb that no longer existed. Personally I see some sort of connection between the two conditions, phantom pain and RSD, both conditions are extremely painful without a firm reason why on the most part. My thinking is if both legs are infected with RSD mirror therapy would not work but, heck you never know until you try. My thinking goes along the lines that reflecting your good limb tricking the mind that the good limb is your bad limb, your bad limb over time will lose the pain. Having both legs in pain leaves me to think it wont work unfortunately. Maybe someone else can chime in on this.
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Old 08-22-2011, 06:37 PM #4
janejane janejane is offline
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Hi! Well, I started the mirror therapy on my own about a week ago or less... I followed the instructions of the YouTube video. I did have more pain every night i did it (I did it for no more than ffive or ten minutes each day) and used everything I have to make my pain less. But, I can move my foot significantly more, which is a bit for regular standards, but for me it's great improvement. It does hurt more but it's tolerable. It started to get really bad one day so I went to the hbot chamber. I felt even worse then, but the next day I definitely saw the biggest improvement. I don't know how or if it can be done if you have red in both legs. However, I did notice thar if I also involve my hands, exactly in the way the person does it in the video, but moving the hands simultaneously, my mirror neurons in my brain felt more act active. I guess its worth trying it for a few minutes, even if with the hands only but without moving the feet, or painful areas very much, just a bit, and mostly moving the healthy limbs. It might hurt a bit, but do no more that it's tolerable. Y,ou know your body and should know what pain threshold not to cross.

Definitely try the Vitaminc c infusions though, they are amaaaaaaaaaazing!

Hugs to all"
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