I agree with your feelings about RSD spreading. I have a number of the same issues.
My RSD is from an accident effecting my left arm with burning pain too. It's now spreading to my face and down to my body and leg. I get numbness in my face and eye twitch. All on the left side too.
I also have degenerative cerebral atrophy effecting my motor skills, speech and balance so when my leg starts getting that tingling pain and I'm standing or trying to walk I fall.
I'm writing this just so you wont feel alone with this monster...

Thanks for your reply! Things seem to have settled down in my face for now...I took an extra Lyrica for a couple of days, and I think that calmed it down again. I will have to be more careful in the future with dental work, though, I think!

I hope you are finding some relief, Jimbo. My son has chronic meningitis, and deals with a lot of the same issues you have, although he doesn't have RSD. The balance and speech issues, as well as some cognitive impairments and headaches/dizziness, really keep him debilitated. We are going to the Mayo Clinic in October to see a specialist in chronic meningitis, which is very rare. I appreciate your compassion in replying, and again, hope things don't spread for you...you have enough to deal with! Take care...

Blessings, Donna

Donna,
Thanks. I hope everything goes well for your son and you. I too take Lyrica. 600 mgs. a day which is the highest a doctor will prescribe. If my flare ups get any worse I have to find some other med to combine.
Oooo I love Colorado...

I am taking 450, so when I add one I'm up to 600. My neuro was going to try to increase me to 600 but I get a lot of side effects at that dosage...but will probably see it someday. He hinted that he might be willing to go higher than 600 if need be, said something about the limit being somewhat arbitrary if I remember correctly, but of course I'm not sure I would want to take the risk. I am not really seeing that neuro anymore...but just so you know, there might be someone who would be willing to go higher than 600 if you were willing to try it. Again, I'm not sure I would...I would search long and hard to see where people have gone with it, since some of these neuro meds can have such horrific side effects. Not that RSD doesn't have horrific effects, too.

Take care, Jimbo, and I wish you the best too...

Donna,
To be honest I have gone over at times. My RSD is bothering me so bad today that I just took 300 mgs. more after reaching 600 mgs. 3 hours ago. Whenever I go over 600 mgs. I get the shakes and a slight headache but the RSD pain is controlled. I just haven't told my neurologist yet...

Ah, I understand, but be careful my friend! Glad you are feeling better!