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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Has anyone had a radio frequency ablation?
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#2 | |||
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Senior Member
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Just run those three words - in order - in the search function . . . and stand back!
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#3 | |||
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Sounds painful but does it work for rsd
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#4 | |||
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Let's just say that 20 years ago, a lot of doctors thought it did/might. Now it's only mentioned by a few and they are generally older guys. In terms of the currant view, this abstract may sum it up:
Cervico-thoracic or lumbar sympathectomy for neuropathic pain and complex regional pain syndrome, Straube S, Derry S, Moore RA, McQuay HJ, Cochrane Database Syst Rev. 2010 Jul 7;(7):CD002918.http://www.ncbi.nlm.nih.gov/pubmed/20614432 And for anyone who's interested, a PDF copy of Management of Lower Limb Complex Regional Pain Syndrome Type 1: An Evaluation of Percutaneous Radiofrequency Thermal Lumbar Sympathectomy Versus Phenol Lumbar Sympathetic Neurolysis—A Pilot Study, Management of Lower Limb Complex Regional Pain, Manjunath PS, Jayalakshmi TS, Dureja GP, Prevost AT, Anesth Analg. 2008 Feb;106(2):647-9, the study referred to above, can be found here http://www.anesthesia-analgesia.org/...2/647.full.pdf Mike |
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#5 | ||
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Member
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Hi,
I had the radio frequency abliviation procedure done a few years ago and the procedure caused my crps to spread and increased my pain levels. Also, the procedure itself is extremely painful as you have to be awake. I wish I never did that procedure and recently I saw an article by Dr Schwartzman in which the article discussed how the radio frequency abliviation causes spread. I hope this helps you to make an informed decision as when I participated in the treatment I blindly trusted the Dr that recommended the procedure. After the treatment I left that Dr because he had nothing left to suggest after the RFA treatment caused the spread. Sarah |
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#6 | ||
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I had a Pulsed Radio frequency Ablation. I wasn't awake, I had that MAC sedation. It did not work and i woke up in more pain. I had a spinal cord stimulator implanted and have had great success with it. 50-75% relief from that burning nerve pain! Still have tremor, get cramps and aching pain but other meds help keep them bareable.
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#7 | |||
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Member
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Thank you. I will speak with my doctor and let him know I don't wish to go forward.
Anita |
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#8 | ||
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Member
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Thumbs down on this treatment from everything that I've read as well......
Quote on this from Dr. Hooshmand: Because the Radiofrequency damage causes high temperature in the adjacent areas of the target, it also destroys the adjacent normal nerves causing a much larger lesion and scar formation with spread and aggravation of pain in a permanent fashion. Not enough good data / results and way too much risk to consider this treatment in my mind. ![]() |
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"Thanks for this!" says: | Swatgen27 (09-03-2011) |
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#9 | ||
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Magnate
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BE AFRAID--VERY AFRAID of this procedure.
I had this procedure performed in Camarillo, CA by Dr. Wolfsohn maybe 7 years ago? It was explained as if it was just another stellate ganglion block and exacerbated my RSD to a degree that is hard to explain. When did wind become like knives? The door closing in a car, a major life problem? Sound and lights, overwhelming? After RF! Years later I found the explanation by Dr. Hooshmand that confirmed I wasn't crazy... NEVER EVER HAVE THIS PROCEDURE!!! I would not take 20 million dollars to have this thing performed. I really liked Wolfsohn in many ways, but I could never trust him after that procedure, or his refusal to acknowledge that it made me worse. I'd seriously question a relationship with any doc performing such an outdated procedure. Think of it this ways: Your doc fires up a GRILL, takes your damaged nerves and COOKS them. Yes, it'll destroy some, but it'll make others even more dysfunctional than they already were! Why memory of the weeks after that procedure was that I cried for hours every day and rocked back in forth in bed fantasizing about chopping off my own hand. My baseline pain level never went back to pre RF level. Last edited by LIT LOVE; 09-08-2011 at 05:16 AM. Reason: typo, argh! |
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#10 | ||
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Member
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Thanks so much for sharing your experience. I found Hooshmand's website very soon after I was diagnosed and his views have saved me from many bad treatments.
Hoping better days are ahead for you! |
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