[cindi1965]

I live in the Eastern Panhandle of WV about 2 hours west of Washington DC and 3 hours north of the epicenter of last weeks earthquake. I was bedridden for the last four days...Hurricane Irene literally body slammed me and I couldn't walk until late this afternoon. Some days, when the weather is crazy, which has been about every other day this summer, I feel like I am going crazy.

I am trying to get back into my life back by working on my jewelry, which is great therapy and spending time with my friends, something I have not been able to do in about 3 years (it's been that long since I aquired RSD) I am refusing to back down from this monster called RSD. But, I got SUCKER PUNCHED by the horrible pain all over my body this weekend. I am trying to learn to live with it, but some days are so hard and grueling that it makes my head spin.

To those of you who have lived with RSD for years, how have you done it? I am hoping because of my strong character that I can stay stable and not lose it like sooo many people I hear about. I pray for everyone on here and I am asking for your prayers also.

[keep smilin]

Originally Posted by cindi1965

I live in the Eastern Panhandle of WV about 2 hours west of Washington DC and 3 hours north of the epicenter of last weeks earthquake. I was bedridden for the last four days...Hurricane Irene literally body slammed me and I couldn't walk until late this afternoon. Some days, when the weather is crazy, which has been about every other day this summer, I feel like I am going crazy.

I am trying to get back into my life back by working on my jewelry, which is great therapy and spending time with my friends, something I have not been able to do in about 3 years (it's been that long since I aquired RSD) I am refusing to back down from this monster called RSD. But, I got SUCKER PUNCHED by the horrible pain all over my body this weekend. I am trying to learn to live with it, but some days are so hard and grueling that it makes my head spin.


To those of you who have lived with RSD for years, how have you done it? I am hoping because of my strong character that I can stay stable and not lose it like sooo many people I hear about. I pray for everyone on here and I am asking for your prayers also.

Cindi....

You have my prayers! I m so sorry for your sucker punch pain due to this nasty weather! I have lived with RSD now for 5 years... It is a daily battle..the first thing I think about when I awake each day... But I like you..refuse to cave to this disease.... I take it each day at a time...I try not to worry about tomorrow and I have to let go of yesterday...and each new day is a gift... Some days I'm feeling so happy hearted and other days...I'm sad... So you are not alone...I m sure of one thing...RSD is not meant for anyone who is weak..weak emotionally...heart and soul...

Bless you... And know that we all care about you...weeze family!!

Hugz, Kathy

[Grace and Peace]

Thank you for what you just said. CRPS is not for the weak.....that gives me so much strength as I can't stop crying. The reality of this has hit me and I can't stop crying.

Originally Posted by keep smilin

Cindi....

You have my prayers! I m so sorry for your sucker punch pain due to this nasty weather! I have lived with RSD now for 5 years... It is a daily battle..the first thing I think about when I awake each day... But I like you..refuse to cave to this disease.... I take it each day at a time...I try not to worry about tomorrow and I have to let go of yesterday...and each new day is a gift... Some days I'm feeling so happy hearted and other days...I'm sad... So you are not alone...I m sure of one thing...RSD is not meant for anyone who is weak..weak emotionally...heart and soul...

Bless you... And know that we all care about you...weeze family!!

Hugz, Kathy

[cindi1965]

Originally Posted by Grace and Peace

Thank you for what you just said. CRPS is not for the weak.....that gives me so much strength as I can't stop crying. The reality of this has hit me and I can't stop crying.

You are so right, Kathy, RSD is not for the weak. I am really sick and tired of blaming my pain on the weather. This evening, my leg started with the painful skin deal. That is one of the symptoms that I really loathe and there is no relief from it. It looks like I won't get any sleep tonight because as we well know it goes on and on and we never know when it will end. I have just started asking for meds for breakthrough pain because it just constantly eats at my brain. Even though I have never considered taking my own life because of the pain, I can see why some people who don't have a support system or ways to occupy their time, kill themselves.

We all HAVE to reach out when we need help. I have said this hundreds of times, if I had not found this board when I did I would have lost my mind! There is always someone one here who is willing to give feedback or a shoulder to cry on. My neurologist had a fit when I told him I joined this board. He said that my symptoms would get worse because I would hear other's stories and develop them. This is sooo far from the truth. If I hadn't joined this board I wouldn't know what was going on with my leg and the spreading to my opposite arm. I am really not thrilled with any neurologist right now because they say one thing and do the other!

[hannah1234]

Hang in there. I have been praying for all you that have been in immense more pain because of the weather and stuff. Ever since I heard you have been in my prayers for strength, comfort, and more comfort, and pain relief, and some rest. Hang in there!!!

Annah

[Russell]

I know exactly how you feel. I could get a job as a weather predictor. Ha ha
My RSD (Four years now) really flares up when rainy or cold weather is on the way. Then during a rain or snow storm, forget it! This monster I live with also does a number on my emotional state too.
Now it's spreading into my leg and already is being complicated by my degenerative cerebral atrophy so I'm in a wheelchair a lot because my balance is effected. Luckily my neurologist knew of this possibility and prescribed one.
I guess all we can do is learn and do our best to live with it.
Best of luck to you...

[alt1268]

Cindi,

Thanks for your reply to Kathy, I live on the eastern shore and weather has always been a big factor on my foot. Stress is another one. Unfortunately, this past week I have had both and found the coldness going from my foot to my knee and my other one is begining to ache. After speaking with my attorney 1st thing this am, and he confusing me even more, I thought it would be easier just to cut my foot off, so everyone could see the pain and leave me alone.
Anita

Originally Posted by cindi1965

You are so right, Kathy, RSD is not for the weak. I am really sick and tired of blaming my pain on the weather. This evening, my leg started with the painful skin deal. That is one of the symptoms that I really loathe and there is no relief from it. It looks like I won't get any sleep tonight because as we well know it goes on and on and we never know when it will end. I have just started asking for meds for breakthrough pain because it just constantly eats at my brain. Even though I have never considered taking my own life because of the pain, I can see why some people who don't have a support system or ways to occupy their time, kill themselves.

We all HAVE to reach out when we need help. I have said this hundreds of times, if I had not found this board when I did I would have lost my mind! There is always someone one here who is willing to give feedback or a shoulder to cry on. My neurologist had a fit when I told him I joined this board. He said that my symptoms would get worse because I would hear other's stories and develop them. This is sooo far from the truth. If I hadn't joined this board I wouldn't know what was going on with my leg and the spreading to my opposite arm. I am really not thrilled with any neurologist right now because they say one thing and do the other!

[Jomar]

Originally Posted by alt1268

Cindi,

Thanks for your reply to Kathy, I live on the eastern shore and weather has always been a big factor on my foot. Stress is another one. Unfortunately, this past week I have had both and found the coldness going from my foot to my knee and my other one is begining to ache. After speaking with my attorney 1st thing this am, and he confusing me even more, I thought it would be easier just to cut my foot off, so everyone could see the pain and leave me alone.
Anita

We have a thread about amputation, and how the pain will still be there...
http://neurotalk.psychcentral.com/thread133800.html

Hang in there he best you can, someday there might be a miracle fix.

[Russell]

Anita,
Amputation is not the answer. As Jo*mar is telling you the pain still is there.
Sometimes I think the same thing about my useless painful left arm. After realizing that it is what it is I just play my piano one handed and live with it. As hard as it is at times...

[alt1268]

I realize amputation is not the answer, but people just don't get it. I lucked out and have a great pain doctor. But no one else seems to get it because all my parts are still there, not like an amputation, where people see for themselves and then can picture how painful it is. I get so frustrated and ****** off.

Originally Posted by jimbo

Anita,
Amputation is not the answer. As Jo*mar is telling you the pain still is there.
Sometimes I think the same thing about my useless painful left arm. After realizing that it is what it is I just play my piano one handed and live with it. As hard as it is at times...