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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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CRPS and my 1st symp. nerve block...

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Old 09-09-2011, 04:55 AM #1
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Question CRPS and my 1st symp. nerve block...
Hi, I am new here and I have CRPS in both feet and my right hand. It started after 2 knee surgeries. My first symp. nerve block is on sept 16th. What should I expect from it?? Does it hurt? Will it help and for how long? Thanks for listening everyone!
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Old 09-09-2011, 09:21 AM #2
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Hi Karen,
Welcome to the forum. Sorry to hear about your RSD. At least you're not alone.
I take it your first nerve blocks will be shots. If that's the case than no. They'll be shots given like you would receive a flu shot.
All they will be are numbing agents delivered directly to the effected nerve bundle in hopes of blocking pain signals to the brain.
Good luck...

Let us know how it goes...
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Old 09-09-2011, 10:55 AM #3
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Karen,

my nerve blocks were done with a little sedation in the lumbar. They hurt just a little but mostly it was pressure. (heavy pushing feeling).
Depending on how long you have had RSD will depend on your success. Mine only lasted 7-10 days.

Welcome, I am fairly new here myself and just so glad to find I am not alone. Everyone has been great and full of information. It is not always what you want to hear but what you need to hear. (THE TRUTH)

anita
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Old 09-09-2011, 03:03 PM #4
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Quote:
Originally Posted by jimbo View Post
Hi Karen,
Welcome to the forum. Sorry to hear about your RSD. At least you're not alone.
I take it your first nerve blocks will be shots. If that's the case than no. They'll be shots given like you would receive a flu shot.
All they will be are numbing agents delivered directly to the effected nerve bundle in hopes of blocking pain signals to the brain.
Good luck...

Let us know how it goes...
Hi Jimbo, thanks for your reply! As far as I know my nerve block will be done under some type of mild sedation? At least that's what the doc said. I am having 4 blocks done in two week intervals. I have had CRPS for about 7 months. I could not get my PCP to listen to me about my bizarre burning foot pain. So here I am at stage 2 and getting my first block. Thanks again for your reply and listening.
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Old 09-09-2011, 03:08 PM #5
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Originally Posted by alt1268 View Post
Karen,

my nerve blocks were done with a little sedation in the lumbar. They hurt just a little but mostly it was pressure. (heavy pushing feeling).
Depending on how long you have had RSD will depend on your success. Mine only lasted 7-10 days.

Welcome, I am fairly new here myself and just so glad to find I am not alone. Everyone has been great and full of information. It is not always what you want to hear but what you need to hear. (THE TRUTH)

anita
Thanks Anita (sp?) I'm pretty sure that's what I am having done. Is your CRPS in your feet as well? If not, where does yours effect you? Thanks for the kind words!! I needed it.
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Old 09-09-2011, 05:17 PM #6
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Karen,
Ooopsie, I forgot to mention. My RSD started in my left wrist and arm and spread to the upper arm, left side of my neck, face then down to my left leg. The nerve block shots were put in the ganglion nerves at the base of my neck. Yours' will probably be different.
My RSD is also effecting my degenerative cerebral atrophy from head trauma which is making a mess of my motor skills, walking and speech...
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Old 09-09-2011, 05:32 PM #7
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Quote:
Originally Posted by jimbo View Post
Karen,
Ooopsie, I forgot to mention. My RSD started in my left wrist and arm and spread to the upper arm, left side of my neck, face then down to my left leg. The nerve block shots were put in the ganglion nerves at the base of my neck. Yours' will probably be different.
My RSD is also effecting my degenerative cerebral atrophy from head trauma which is making a mess of my motor skills, walking and speech...
HOLY HANNAH!! I am sending you good thoughts and prayers. I can not begin to imagine how much pain you must be in. What are your doctors doing for you now to help with pain? Are you still having nerve blocks? *hugs* Karen
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Old 09-09-2011, 06:13 PM #8
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Karen,
Thanks for the thoughts and hugs. No more blocks. They didn't work for me.
As for pain med prescribed is Lyrica 600 mgs. a day split up in 3 times. My neurologist is leaning towards narcotics if the Lyrica doesn't do the job but I'm trying not to go that route. I might start including prescription Aleve.
So far so good!
Again thanks...
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Old 09-09-2011, 07:43 PM #9
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Karen,
Mine is in my right foot and the cold is now going up my leg with cramps. It will be 2 years next month since I first heard the word RSD.
I'm not sure what happened to the rest of my message earlier, I had posted it with my phone.
But I wanted you to know about EMLA cream. It's a numbing cream that can be applied prior to your procedure, cover with plastic wrap. I am told its great for things like IV's. You should ask your doctor before your procedure.
Anita
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Thanks Anita (sp?) I'm pretty sure that's what I am having done. Is your CRPS in your feet as well? If not, where does yours effect you? Thanks for the kind words!! I needed it.
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Old 09-10-2011, 04:29 AM #10
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Quote:
Originally Posted by alt1268 View Post
Karen,
Mine is in my right foot and the cold is now going up my leg with cramps. It will be 2 years next month since I first heard the word RSD.
I'm not sure what happened to the rest of my message earlier, I had posted it with my phone.
But I wanted you to know about EMLA cream. It's a numbing cream that can be applied prior to your procedure, cover with plastic wrap. I am told its great for things like IV's. You should ask your doctor before your procedure.
Anita
Thanks Anita!!! I will ask about the cream at my block appt. I have to admit the "cold" feelings of RSD don't bother me that bad. Don't get me wrong, I DO NOT enjoy the feeling of having my feet, ankles, and now my hand feel like I am in a meat locker. But I think the worst part for me is the burning, scalding, on fire pain that I have. Man oh man nothing seems to make that feel better. Anyway, thanks for the info about the cream.
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