The past 9 months the dd arm start jerking to the point her neck and babk in pain.Her arm is still cold and her pain is getting worst every day and I CAN DO IS CRY

I just saw your post , so haven't read your other ones.

Is she on any muscle relaxers?
Can she get any ongoing therapy for these spasms & pain?
Has any ultrasound, low level laser, near / far infrared been tried?

I don't know how hypersensitive her skin in in those locations , but massage if tolerated might help.

She going back to therapy if they can find one in the area that knows anything about RSD.Her skin is very sensitive she can not to be touch even taking a shower is painful for her .

Dear DD in Pain,
Sorry you have to go through this rsd mess. It sounds like the person you are speaking about is having muscle spasms. I had this happen to me within the first several months of being diagnosed several years ago. I was in the hospital for the rsd pain and all my body parts started moving up and down or back and forth. It was the craziest thing ever. I was lucky to have a good roomate and I could not even move from the spasms and she called the nurse for me and then a doctor came in to see me...took one look and his face turned white and his mouth dropped (lol you know you are in trouble when a neurologist does that). He ran and got me I believe it was ativan (or Xanax I cannot remember) and within minutes of getting that shot in my iv it calmed down almost completely. Maybe some type of anti anxiety or muscle relaxer can be used for pain and to calm things down a bit. I understand completely about the skin sensitivity. I cannot have my arms/legs exposed to any type of air/water. It is an entire process to get a shower. What I have found that helps me is to take a bath first. I start filling up the tub (and leave on my shirt to keep my arms warm from drafts (of course I use a lamp in my bathroom because the fan makes me worse from the air drafts). Then I take the shower massage and start from the toes and move up the legs until I can take the shirt off. Of course this is still painful but it is better than getting a shower...that is the worst. I then soak in the tub with epsom salts and gather my strength and get up and take a quick shower. I usually wet my hair in the bath and at least start washing it and then take a shower to rinse off. It seems to help me to have my skin already warm from the bath before taking the shower. Do whatever works. There is always a method to my madness haha. Sorry for your problems and I pray for an easier and restful sleep tonight (and for all my rsd friends).
Take care,
kathy d

Research all the meds she's taking to rule out side effects.

I have random, violent spasms in my right hand that have caused me quite a few burns and other scary accidents. After recently going off Pristiq, there seems to be a decrease, but it's a little early to be certain.

Baths are sooo much easier for me. If the sound and vibration of filling the tub exacerbate her pain, perhaps you could prepare it for her? I use a large aluminum bowl in the bath to wash my hair.

I find taking a bath also helps to regulate my body temperature when I get an episode of the chills or night sweats.

I get muscle spasms too. Mostly in the effected arm but also it travels to my neck and back. I also without warning start shaking like convulsions. My head shakes up and down and it's happening more frequently than before.
The last time I was at PT the therapist saw it happen and documented it which was good. Well, not really, but it was good for someone medically to see it happening.
I'm seeing the neurologist next week and I will bring it up. She's very good at treating RSD so I'm sure something will come of it.
I guess these tremors are one more thing that is common for us...