Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-14-2011, 07:30 PM #1
Jimking Jimking is offline
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After reading all the posts I guess a good question will be, kittycapucine, what meds have you just started taking?

Although I don't have RSD, the wife does, I've experienced something similar. When I first started taking my mild blood pressure med there where 2-3 times I thought I was about to drop out, but didn't.
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Old 09-14-2011, 07:48 PM #2
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Hi, Jimbo:

Quote: "The neurologist relates this with my RSD spreading to my leg." Where was your RSD before it spread to your legs? My RSD was in my left knee. My RSD then spread all the way down to the tip of my left toes and all the way up to the middle of my left thigh. Some years later, my RSD spread along my spinal cord all the way up to my brain. Afterwards, my RSD spread to my right leg and to both my arms, before becoming full body RSD.

This problem, in your case and maybe in my case, being linked to RSD, could be what is called a "movement disorder" of RSD.

Quote: "Be careful and stay aware that this can happen again without notice..." You are right. I do not want to fall down with my two-year-old baby boy in my arms, I do not want to fall down the stairs or elsewhere and die because my head hit something hard and sharp, and I do not want to fall down on the street to be hit by a car, etc. However, I do not know if such events can be prevented.

Thanks for your help.
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Old 09-16-2011, 10:21 AM #3
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Kitty,
Luckily for me after my first encounter with not being able to do stairs WC put in a stair lift for me because the only way out of my house is going down stairs. They have also provided me with a wheelchair.
My RSD started in my left wrist and forearm after a surgery. I also have degenerative cerebral atrophy which compounds the problem. The RSD spread up my arm, shoulder, neck and face. Then my left leg became very weak with burning pins and a falling asleep sort of feeling but with pain. The RSD effects my central nervous system which runs along the spine at the cerebral area of the brain. Now I'm getting more frequently uncontrollable convulsion shakes which started after my accident...
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