Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-21-2011, 10:10 PM #11
LIT LOVE LIT LOVE is offline
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She flew in to do a drop-in? I hope I'm misunderstanding.

On the other hand, regardless of her rudeness, the real state of your home, might clue her into the severity of your problem.

The only way I can manage living alone is to have weekly help. If your children and husband can't absorb more of the duties, getting somone to do a major cleaning a few times a month might be an idea to consider.
After suggesting your family take on more of the duties, I read someone else's thread that reminded me how careful we have to be to not allow our family to just become our caregivers. So ignore my underlined bad advice above!

Learning to adapt, which it sounds like you're doing, is key. If you can afford an iRobot vacuum like Roomba, you might want to try one out. Downsizing your stuff and or your space certainly helps. Adapt your kitchen tools so that you can still cook, etc...

You might also want to check to see if your state has a program to provide you help a few hours a week.
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Old 09-22-2011, 03:00 AM #12
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The first thing you say to them.......Hey there's a real cool motel nearby.....
Right! That's exactly what I did.
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Old 09-22-2011, 03:07 AM #13
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You guys/gals are the best! Thank you for the support, co-sign on my sanity, and laughs when I really needed to laugh. Getting ****** about it only makes things flare, so better to just laugh and say to myself.... "w-h-a-t-e-v-e-r sista"!
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Old 09-22-2011, 03:42 AM #14
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Truly I am blessed. As a family we manage, and I do as much as I can, for as long as I can, but there is definately a limit. The "suprise... company" who's never been here would have thrown me off on my best pre-RSD day. It was just rude of them. And another moment of clairity that this is the new me (limitations).

If I/we had an open gapping wound that reflected the pain felt by RSD, it would be so obvisous to everyone what the limits are. They can't see the pain, only the results of the pain.

when I wrote my original post, I was just really angry. Angry at them, angry at this damn condition. Bottom line... it just is what is. Que Sera, Sera.

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Originally Posted by LIT LOVE View Post
Learning to adapt, which it sounds like you're doing, is key.
You might also want to check to see if your state has a program to provide you help a few hours a week.
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"Thanks for this!" says:
kathy d (09-22-2011), LIT LOVE (09-24-2011)
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