Well, woke up this morning to distraught kids - Hubbies legs were cramping up on him and it would not stop. Things finally settled down...THANK GOODNESS.

My question here is I'm wondering what your take is on all this - also what were some of the signs that the RSD was spreading.

I DONT want to think the worst here - Have not even brought it up to hubby although after being married for this many years I'm almost certain he is thinking the same thing...

I'm hoping and praying he just needs some water (ya know they say take H2O for charley horses) or that it was just a freak incident as we've had a long weekend...I dont want to be worried about this and to have this to think about but, I dont want to ignore it if it is something we should be concerned about either.....

i have a ton of trouble with cramping [like right now] when the barometer goes up and down. i'm not sure where you live, but i have often thought in the fall, that my rsd is spreading only for it to calm down when the weather settles. now that i know to expect it, i find that using ibuprofen often, and using heat, helps until the weather change happens. also my mind is at ease with it now.
i have a friend with rsd, that i have written to for years, who lives in CA, and she goes through the same thing even though her weather is so different from mine.
hope this helps ..... joan

I get cramping in the right leg so far, and it is daily. I have noticed that if I use the leg more than usual it will be more severe. Also when I am relaxing, or trying to go to sleep it occurs every single time.

I also noticed that the musccles feel like they are spasming, kinda like real fast flexing. It does that all day long

I am not sure if it has anything to do with spread though. For me the spread was noticed first by pain in the area that increased over time, and sensitive skin.

I hope everything stays calmed down

Have you considered a Calcium /Magnesium blend supplement?

Both should help if it is a "Charlie horse" type of thing.

sometimes I just drink more milk if i get a charlie horse.

but I don't know if his has anything to do with RSD or a regular charlie horse.

There are several other things that an cause cramping.
One is medication for high cholestoral, throid problems is another, dehydration.
Also if lumbar problems. Then the defy them is to press the heel down not to pull legs up.

Make sure hubby see doc for blood work to look for problems like this, not jsut the typical cbc or whatever is the typical test...
Dianne

When the nerves in my foot had pressure on them( caused by a doctors exam, thunder and lightning storms, changes in temp or barometer) my toes would each spasm to a different beat.

It was so bizarre to watch them twitching and jerking around with minds of their own. It hurt like hell when it happened.

Nothing helped it go away completely until my chirorpractic adjusted the bones away from the nerves. Whenever the bones would shift back - the muscles would spasms again.

So, in my particular case, muscles spasming was caused by something pissing a nerve off.

Peace and hope,
Lisa

Ok, lets see here. Epson salts for cramping and spasms. I had the same problem today and the soak and some stretches while soaking relieved. Did almost cry through stretching. Thank goodness for DD hugs, helping me through them!

Spreading well for me it was mirror pains\burning and minor swelling on the other side. I have variable temperature control with my rsd to hot or to cold. It happens on both sides. For me the mirrored side is a was a lower pain degree but not to much lower. Rarely is it higher but it does happen periodically.

just my 2 cents,

rain

Thanks for all your help everyone.

His arm has been spasming for the past few months - He has muscle relaxants for that - His leg (the one that had the RSD) used to spasm and still did occasionally but this today is both of his legs, toes curling, ankles unmovable and this going on in both legs. Even the one without the RSD.

He's had another episode today and his legs are very weak........He's barley able to make it to the bathroom. Not sure what the heck is going on but we're getting ahold of the doctor tomorrow.

Hugs to you and your's! Hope he is feeling better soon. You are in my thoughts and prayers!

Rain

In my case the spasms, cramping, etc., were persistent until the doctors put me on Baclofen. It took a little while to get to the correct dosage, but for three years now it has spelled big time relief.

I used to get muscle cramps and spasms that would wake me out of a sound sleep - in the middle of the night. It was an ugly sight to wake up hurting like that - squirming trying to fight off the pain. And, when the spasms would settle down my muscles would be so sore that I thought that I had just been run over by a truck!

Good luck & I hope he can find some relief.