Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-24-2011, 04:07 PM #11
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Karen,
Here's one place http://www.zappos.com/uggs
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Old 09-24-2011, 05:52 PM #12
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Sorry the spelling is ugg. I got mine at Nordstroms. They are the basic tall ones that come just below the knee.

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Old 09-24-2011, 07:13 PM #13
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karen,

I have crocs that are 2 big. they dont touch the top or the side. I also have the insulated ones that are one size 2 big. I have a low pair of uggs as well. I have only worn them once, but they are nice and soft on the inside.

Socks are tricky. Somedays I can wear them for awhile, other times I find a stretched out pair. I definetly like the idea of cashmere. But anything under 90 decrees or so, I find I need to put something on my feet while I am up. If my feet are up in the recliner I am ok.

How are you doing with blankets and such? I got a bed cradle in February so I could sleep a little bit with my husband.
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Old 09-24-2011, 08:14 PM #14
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karen,

I have crocs that are 2 big. they dont touch the top or the side. I also have the insulated ones that are one size 2 big. I have a low pair of uggs as well. I have only worn them once, but they are nice and soft on the inside.

Socks are tricky. Somedays I can wear them for awhile, other times I find a stretched out pair. I definetly like the idea of cashmere. But anything under 90 decrees or so, I find I need to put something on my feet while I am up. If my feet are up in the recliner I am ok.

How are you doing with blankets and such? I got a bed cradle in February so I could sleep a little bit with my husband.
Ohhhhhh...... blankets. Eek! I can't have anything touch my feet when I am trying to sleep. But I am going to get a pair of UGGS for winter time. Thanks for all the helpful tips everybody. Karen
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Old 09-24-2011, 08:20 PM #15
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Hi Karen,

You may want to start working on a desensitizing program, it is tough when it gets cold and your hands and feet can 't tolerate anything on them. Try to keep some some soft socks and gloves on every day for increasingly long periods of time. and run your hands and feet through bowls of textures like cereal, rice, etc.

I love Crocs and Uggs. crocs are available at Amazon and some retail stores (****'s has some) check online. The woolly Monmouth type run small, so if you order those without trying them on definitely go up at least one size. Uggs are sold at Nordstrom and run about $200, but there are a lot of cheaper imitations available now, too. Uggs are AWEOME!! I live in the Northeast and couldn't survive my long walks early in the morning in the winter without them.

Good luck, Sandy
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Old 09-25-2011, 12:10 AM #16
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Hi Karen,

You may want to start working on a desensitizing program, it is tough when it gets cold and your hands and feet can 't tolerate anything on them. Try to keep some some soft socks and gloves on every day for increasingly long periods of time. and run your hands and feet through bowls of textures like cereal, rice, etc.

I love Crocs and Uggs. crocs are available at Amazon and some retail stores (****'s has some) check online. The woolly Monmouth type run small, so if you order those without trying them on definitely go up at least one size. Uggs are sold at Nordstrom and run about $200, but there are a lot of cheaper imitations available now, too. Uggs are AWEOME!! I live in the Northeast and couldn't survive my long walks early in the morning in the winter without them.

Good luck, Sandy
Hi Sandy, thanks for the info! My PM doc has me doing desensitizing things through out the day. I wore a pair of footies for 1/2 an hour yesterday!! Then I put on a pair of tennis shoes for about 10 minutes. Baby steps. They just opened a Nordstrom in Tennessee and I am going to get a pair of UGGS sometime soon. Thanks again for all of your wonderful advice. I think I will put my feet in a bowl of rice krispies tomorrow, they seem like they might be soft. *hugs* Karen
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Old 09-25-2011, 09:17 AM #17
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Karen,
Try using a bowl of rice for desensitizing. That's what my PT has me use and it seems to work. In her office I put my hand in a fluido tank filled with
warmed grounded corn husks and agitated. I love that. I wonder if that could be done for your foot?
Well, I just wanted to chime in with the rice idea...
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Old 09-25-2011, 09:26 AM #18
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Hi everyone, just wondering about the cold weather on the way and what to do about my feet? Socks and shoes send me into outerspace with pain. Does anyone have any ideas or tricks that they find helpful to deal with RSD foot pain? Thanks everyone!
Because my foot (use to be feet) is just one big club attached to my ankle I've been battling this problem for over a decade. First solution was to find the largest bootie type sock that only goes to the ankle but that has lots of stretch. Diabetic socks are another solution, but only if you can find the largest size. As far as a shoe, the only thing I can wear is a soft clog type shoe in size 14 which is getting harder and harder to find. I use to find them on Land's End but now they're only offered to size 13 so they're not big enough. There are these nasty diabetic like bootie things that look awful and I doubt if a person who walks would do very well with them. Since I'm in a wheelchair full time I'm only looking for something to cover up my foot without looking like a complete moron. At home, I simply don't wear anything due to the swelling.

Hard to believe we can't fit in a sock or shoe yet that's our daily walk/roll. I've stopped being bothered by people staring at me in public when I have on a slipper type shoe that always appears weird. I did purchase a huge pair of sandals once with Velcro straps on top but these cut into my foot just as bad even though the idea looked right at the time.

A real problem, but I'm sorry there's no easy solution. Best of luck. Bob.
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