Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-27-2011, 08:05 AM #1
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Karen67 Karen67 is offline
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Join Date: Sep 2011
Location: TN
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Originally Posted by AlishaE View Post
I was recently diagnosed with CRPS type I in my left leg. It was triggered by knee surgery last September (I knew something was really not right by October) and it spread to my entire left leg this summer.
My question is....
When it spreads to another limb does it just happen all of a sudden? Are there small pains that increase and then boom it's there? Or do you wake up one day and know that it's in another limb?
This is all very scary to me and I try not to think about it spreading more but it's hard not to sometimes.
Thanks! Alisha
Hi Alisha, I also had knee surgery (both knees) but mine started in my right foot and then went to my left foot, both ankles and now here I am 7-8 months later and it has started in both of my hands as of about 1 1/2 months ago. So, just like everyone else on here, it is different for everyone. I am so sorry you are having to go through this sweetie. But please know that you have a very large and caring group of people on here that understand EVERYTHING that you think and feel. So if you ever need to whine, cry, or just get mad, we're here. Karen67
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