Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-03-2011, 04:16 PM #11
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The idiot workers comp. dr. said he thought part of my problem was the hardware.
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Anita,
Was there a medical reason for removing the plate and screws? I still have the plate and screws in my wrist. I'm too chicken (lol) to get it removed if I don't have to...
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Old 10-04-2011, 03:56 AM #12
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I am type 2. My injury was caused when after an angiogram where they told me they would see me in 10 - 15 yrs. The heart and arteries are healthy....they blocked the artery at the cath entry site.

A week later I was back getting surgery to remove the blockage. They tell me that the lack of oxygen killed specific nerves in the leg, plus a part of the man made clot broke off and lodged in the calf. They said that to go after the piece of clot would tear the leg up creating more damage than the clot would. The leg has never been the same, and because they know which nerves, and how it was damaged....it is type II.
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Old 10-04-2011, 08:34 PM #13
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I have Type I, and it started with just a fall on my knee after slipping on a wet ceramic floor.
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Old 10-04-2011, 09:32 PM #14
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Originally Posted by peppermintpatty View Post
I'm just wondering... it seems to me that most of y'all have Type I. Am I the only one on here with Type II? If you have Type II, what kind of injury did you have (if you don't mind saying)? Has your CRPS spread?
Type II. Went in for panlabral SLAP repair, capsular shift, Bankart repair, chondroplasty and subacromial decompression due to car accident injuries (but normal nerves) and woke up with permanent brachial plexus damage and CRPS. Neurodiagnostic tests (EMG and SSEP) were positive and supportive for the same. Surgeon hadn't a clue. Email me first if you ever need shoulder surgery in the San Diego area. The rest is history....
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Old 10-04-2011, 09:42 PM #15
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I am Type I, rotator cuff tear. Injured in Nov 2006, first surgery 5/07, second one 4/08, diagnosed 6/08. First k infusion in 4/10.
Sandy, you might be type II due to neuropraxia, etc. from surgical traction or direct injury if surgery was arthroscopic.
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Old 10-04-2011, 11:56 PM #16
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Quote:
Originally Posted by allentgamer View Post
I am type 2. My injury was caused when after an angiogram where they told me they would see me in 10 - 15 yrs. The heart and arteries are healthy....they blocked the artery at the cath entry site.

A week later I was back getting surgery to remove the blockage. They tell me that the lack of oxygen killed specific nerves in the leg, plus a part of the man made clot broke off and lodged in the calf. They said that to go after the piece of clot would tear the leg up creating more damage than the clot would. The leg has never been the same, and because they know which nerves, and how it was damaged....it is type II.
Oh my goodness, that sounds horrid. I am so sorry.

Was it your femoral nerve? That's where my issue is. Of course it has spread beyond the distribution pattern for that nerve by now (I'm two years out from my injury date.)
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Old 10-05-2011, 03:39 AM #17
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Quote:
Originally Posted by peppermintpatty View Post
I'm just wondering... it seems to me that most of y'all have Type I. Am I the only one on here with Type II? If you have Type II, what kind of injury did you have (if you don't mind saying)? Has your CRPS spread?
Type II, ulnar nerve damage from the nerve being tangled in a titianium elbow/radial head. Had to have a ulnar nerve transposition. Not fun..
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Old 10-17-2011, 01:07 PM #18
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Default Which type of CRPS I OR II

I have type 2 after a Dr.(A) severed my radial nerve above the wrist just over 4.5 years ago. I had 2 surgeries since to try to fix the radial nerve with no luck. After each surgery my pain got worst and has spread through out the right side of my body hand, wrist, entire right arm, upper back, and chest, neck, and now both legs all of the right and the upper left.

The Dr.(A )that damaged my radial nerve kept telling me that the pain I was experiencing was normal for the first 18 months after my surgery, it was only after I had a nerve test that showed I had nerve damage is when he told me that I caused this by sleeping on my arm wrong and that there was nothing he could do for me. This same Dr.(A) that did the first surgery and blamed me said in his depo just a few months ago that he did not damage my radial nerve that it had to have been the new Dr.(B) that found my nerve severed 22 months after the first surgery from Dr. A.

Dr.(B) after many weeks of doing many test with no luck finally told me that the only thing left was surgery. He felt that I may have a nicked nerve at the very worst as he was going in blind and did not use a block. To Dr. (B) surprise is when he found the radial nerve severed. He had to clean both ends and use a 1.5" tube to attached the ends together. Now my nerve had to regrow 12"-14". A year things went bad pain wise and had a 2nd. surgery only to find that the radial had not grown a 1/4" of a inch. This surgery was 22 months ago. Everything feels the same as before the first nerve surgery. The radial nerve will not regrow and my DR.s will not touch it anymore because it makes my pain much worst.

At lease Dr.(B) gave it his best.

Dr.(A) does not make mistakes just ask him.
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Old 10-19-2011, 04:19 PM #19
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I am Type II I think. I went in for a total shoulder replacement and after surgery my fingers felt numb. Weeks later when I went for P/T the pain was severe that I went for pain management and was told I have RSD and 25% nerve damage of the medial nerve and muscle...go figure as now I have no mobility of 3 fingers on my left hand.
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Old 10-23-2011, 04:06 PM #20
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My husband was diagnosed with CRPS Type II in right arm over a year after ulnar nerve transposition and carpal tunnel surgery (both at the same time). What are the differences between type I & II?
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