Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-03-2011, 02:42 PM #1
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Peppermint patty,

mine is a 2. I fell and had mutliple fractures and a spiral fracture of the long bone. (tibia). Thinking back I had a problem with the temporary cast they put on after the reduction and before the surgery. Felt like my foot was being rubbed raw.
Anita
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Old 10-03-2011, 02:48 PM #2
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Quote:
Originally Posted by alt1268 View Post
Peppermint patty,

mine is a 2. I fell and had mutliple fractures and a spiral fracture of the long bone. (tibia). Thinking back I had a problem with the temporary cast they put on after the reduction and before the surgery. Felt like my foot was being rubbed raw.
Anita
Ouch! So what happened to your nerve? Was it severed entirely? Which nerve is it?
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Old 10-03-2011, 03:02 PM #3
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No severed nerve. (not that anyone told me), but when I had the plate and screws removed by another doctor. 8 months later I had a baseball size of scar tissue in the ankle joint and the superficial nerve was strangled by scar tissue. Now it looks like the sural nerve may have issues as well. Don't understand how it jumps nerves or gains nerves, but it stinks. As you are aware.
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Old 10-03-2011, 03:24 PM #4
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As you are aware.
All too well.
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Old 10-03-2011, 04:09 PM #5
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Quote:
Originally Posted by alt1268 View Post
No severed nerve. (not that anyone told me), but when I had the plate and screws removed by another doctor. 8 months later I had a baseball size of scar tissue in the ankle joint and the superficial nerve was strangled by scar tissue. Now it looks like the sural nerve may have issues as well. Don't understand how it jumps nerves or gains nerves, but it stinks. As you are aware.
Anita,
Was there a medical reason for removing the plate and screws? I still have the plate and screws in my wrist. I'm too chicken (lol) to get it removed if I don't have to...
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Old 10-03-2011, 04:16 PM #6
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The idiot workers comp. dr. said he thought part of my problem was the hardware.
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Anita,
Was there a medical reason for removing the plate and screws? I still have the plate and screws in my wrist. I'm too chicken (lol) to get it removed if I don't have to...
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Old 10-04-2011, 03:56 AM #7
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I am type 2. My injury was caused when after an angiogram where they told me they would see me in 10 - 15 yrs. The heart and arteries are healthy....they blocked the artery at the cath entry site.

A week later I was back getting surgery to remove the blockage. They tell me that the lack of oxygen killed specific nerves in the leg, plus a part of the man made clot broke off and lodged in the calf. They said that to go after the piece of clot would tear the leg up creating more damage than the clot would. The leg has never been the same, and because they know which nerves, and how it was damaged....it is type II.
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Old 10-04-2011, 08:34 PM #8
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I have Type I, and it started with just a fall on my knee after slipping on a wet ceramic floor.
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Old 10-04-2011, 11:56 PM #9
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Quote:
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I am type 2. My injury was caused when after an angiogram where they told me they would see me in 10 - 15 yrs. The heart and arteries are healthy....they blocked the artery at the cath entry site.

A week later I was back getting surgery to remove the blockage. They tell me that the lack of oxygen killed specific nerves in the leg, plus a part of the man made clot broke off and lodged in the calf. They said that to go after the piece of clot would tear the leg up creating more damage than the clot would. The leg has never been the same, and because they know which nerves, and how it was damaged....it is type II.
Oh my goodness, that sounds horrid. I am so sorry.

Was it your femoral nerve? That's where my issue is. Of course it has spread beyond the distribution pattern for that nerve by now (I'm two years out from my injury date.)
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Old 11-04-2011, 02:06 PM #10
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Type II due to a venipuncture injury to the sensory branch of the radial nerve in my right arm six years ago. Spread to the right half of my body, head to toe, within two years, but no more since then. No improvement, but manageable.
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