Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-08-2011, 03:07 PM #1
janejane janejane is offline
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Smirk Which is the best, or least bad, rsd doctor in Boston?

Hello!
thanks for reading my post. I hope you are having a good day!

I have been fighting a horrible flare where my rsd has been awful and wants to spread into my two legs. So far, the only thing that has helped is pool exercises daily and vitamin c intravenous infusions (I wrote the formula details in my previous thread).

But I do need a doctor. I have never had ketamin infusions, not even a sympathetic block, but I definitely might need one now. Who can I see? Who can recommend someone good in Boston? Could you please tell me if you have had a good or bad experience with doctors here? I have had rsd for eight years but now I really need someone who can help me, at least give me a pain med. All these years I have been mostly on NSaids, and it's about time I find someone. Years ago I saw a feww very nasty doctors at a pain center and ended up being traumatized of pain doctors instead. You know how awful and mean they can be. But now I really do need help.

You can pm me if you want too.

Thank you so very much!
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Old 10-08-2011, 05:02 PM #2
SandyRI SandyRI is offline
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If you can make it to Pawtucket, RI I highly recommend Dr. Chopra at SNAPA. 102 Smithfield Ave. 401-729-4975. I think that number is correct, but you can check on FB, the Ketamine Klub, or do a Google search, to make sure.

I had a terrible time at the Beth Israel's Arnold Pain Center. They shut their doors to new ketamine patients several years ago, and were positively evil when I was referred to their program. Later I learned that one of the docs had connected with Chopra regarding the need for the inception of a ketamine program in southern New England, claiming that too many Rhode Isanders were getting referred to Boston and they didn't want us. nice, huh? I will NEVER get over how badly I was treated there.

Some of my best experiences early in my diagnosis were at St. Elizabeth's in Boston. Dr. Joseph Reyes used to work there, he was awesome. But he left for another position out west somewhere a few months ago. I don't know who took his place and how good the care might be without his leadership.

The best of luck to you, Sandy
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Old 10-09-2011, 12:30 PM #3
janejane janejane is offline
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Thank you Sandy! I really appreciate your reply. RI is far but might be able to make it. Thank you so much for the info!! I remembered you had told me about dr. Reyes recently did call but I realized he wasn't there anymore but in NV. I will send you a PM.

Anybody else, if you know of someone more local to Boston, I would really appreciate your ideas!
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Old 10-10-2011, 12:54 PM #4
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Have you tried Darthmouth hospital in New Hampshire? They have a pain clinic there and I used to see Dr. Beasley and he was awesome, he also trained other doctors about RSD. They weren't doing ketamine infusions though, but he was there for me, and offered me the meds I needed, hope this helps. p.s. It's a little over an hours drive from Boston ( if memory serves me right)

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