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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Hi there, I agree with Mummyjen. It is early days and things can get better!! Sometimes you do need to be very pro-active and insist upon a referral to a doctor who will treat your CRPS with blocks, ketamine, graded motor imagery and physio instead of huge amounts of medications. The temperature change is just a sign of sympathetic nerve dysfunction causing vaso constriction and therefore colder temperature. It is often transient and will often improve greatly with nerve blocks. Please stay positive and remember that many many people get better but unfortunately they don't usually come onto these forums to tell us. You can get a pretty jaded view of the outcome but just reading CRPS/RSD forums. Lots of luck and ![]() Tayla |
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#2 | |||
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Co-Administrator
Community Support Team
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Some of the temp change can be from TOS too.
The early treatments as suggested by the others is the way to go- I think. If you can add some Vitamins & supplements from a nutritional/healing standpoint- i think theres some info on that here or ask on the Vit & Supp lement forum- there are interaction checkers on both forums stickys too.
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#3 | ||
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Hi Trix,
Check your PM's. HOPE |
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Hello..
I would like to add antioxadents such as grapeseed extract.. I just drink ALOT of white tea for my antioxadents, and if you wanna warm up that arm I'd sugest a warm soothing epsom salt bath (helps with the pain too). I was diagnosed at 4 months and thanks to WCB didn't get my first block till I was over 9 months along (lol sounds like gestation) and by then it was too late. Do your research and then bring it to your doctor, but don't overload him/her at first. I didn't push enouph and don't think it coulda put my fire out permanantly because I have body wide symptoms that started before my blocks did. Sory to ramble the cold thing is scary just try to stay warm and do some research... we can help you here.. this group of people have awsome support and research potential here a goldmine. Have you read the rsdrx.com website? Best of luck hon and try keep that limb warm I find the colder I get the worse my pain. Hugs' Sandra ![]() |
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