Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-13-2011, 11:38 PM #1
Jennifer Q Jennifer Q is offline
Junior Member
 
Join Date: Oct 2011
Location: Hawaii
Posts: 19
10 yr Member
Jennifer Q Jennifer Q is offline
Junior Member
 
Join Date: Oct 2011
Location: Hawaii
Posts: 19
10 yr Member
Post New.....not sure what to think

Hi all,

My name is Jenn, I'm 33 years old, married, mother of 2 amazing boys and have been suffering with "something" for almost 3 years now. I have seen every "-ologist" known to man. Some believed there was something obviously wrong with me as they looked at my blue swollen left arm and others made me feel like I was supposed to be in the nut house. I have as recently as Monday seen yet another vascular surgeon who finally said "I think you might have RSD", (something of which I have previously brought up to the other ologist peeps). I literally cried in his office and I had to frankly ask him if he believed me or if he thought I was crazy....he said he had a previous patient with RSD and from what he saw and from what I told him he believes me. Holy cow...I was just about to give up, where was this man 3 stinkin years ago? Anywho, I think I have spent the last 3 years trying to convince everyone around me that what I was going through was real that when he said those words it was kind of a relief UNTIL I really heard it again and was devastated by what he said. He is sending me to another Neurologist but that dude is super booked and I don't get to see him until November 9th. Then my vascular guy is talking about nerve blocks and this and that and I'm like whoa whoa whoa slow it down buddy what does having RSD really mean? I'm so confused!!!!!! Which is what lead me to this site. He told me to google it and he'd have more info on our follow-up visit. Uh okay....doesn't he know that google is the bathroom wall of society? But I've been googling anyway and its freaking me out.
So here's what's been going on with me......I. was at work one day when I first noticed that ultra crazy pain in my left arm from my neck all the way down to my digits. It felt like it was ice-cold yet burning and tingling on the outside as well as the inside. The pain was so intense I cried like I never cried before. I didn't know what the heck was going on. It burned yet it was cold and it started to turn colors blotchy (like corned beef hash lol) then super dark red and then blueish purple and started to swell up. My fingers were like fat ugly blood sausages. Okay not that dark purple but they were fat and ugly. Then I lost complete feeling....it went numb as if someone tied a tourniquet around my neck numb. I couldn't hold anything heavy in my hand and this continued everyday since. Its getting worse as the days go by. I am a lab tech so I need to feel peoples veins with my left index finger and I can't do it anymore. I'm scared that I can't do my job as well as I used to. I can't squze with my left hand, I can't hold a cup either, heck I can't even hold a fricken peice of gauze in my left hand. I tried to keep a journal of my "triggers" but it seems EVERYTHING is a fricken trigger. I find stress and my approaching period makes me crazy hurt and smurf like (turn blue). I'm exhausted, I'm losing my mind....my memory has been going down the tubes. I can't remember what I did 5 minutes ago and I find myself pondering why I came into a room. I have dificulty articulating what I want to say because the words get jumbled up once they come out of my mouth. I'm starting to realize that I've gone crazy or something! Besides the pain in my left arm, my left leg is going nuts too. I'm feeling the same symptoms in my leg now....WHAT THE? I am having a hard time walking or putting pressure on it. Its like somebody shot me up with novocaine throughout my whole left side. I know its all there but it doesn't really feel like its there. My boss and co-workers are baffled at what's going on with me and honestly I think they secretly think I've gone crazy. They see stuff but I don't think they quite believe how much pain I am in. My husband and kids, bless their hearts try to be understanding but they don't know what to make of it either. I feel so alone! I have no idea what's going on with me and no one seems to understand.
Can someone, anyone please tell me I'm not crazy and help shed some light on this. I would truely appreciate it. I'm starving for answers but more importantly some support.

Going nuts and BLUISH,
Jenn
Jennifer Q is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
alt1268 (10-18-2011), birchlake (10-14-2011), cindi1965 (10-14-2011), fmichael (10-14-2011), SandyRI (10-15-2011)
 

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