Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-15-2011, 12:01 AM #1
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Jenn,
Welcome to the forum/family. I also am here to tell you that you're not going crazy!
Here you'll find people who understand this monster. We all share common symptoms but also vary in other ways. Here you can learn things, talk to understanding folks, hell even scream and vent and we'll understand and lend you advice and even steer you in the right directions if we can.
I'm so sorry for your battle with this monster but at least you found us...
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"Thanks for this!" says:
Jennifer Q (10-15-2011)
Old 10-15-2011, 12:09 AM #2
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Quote:
Originally Posted by jimbo View Post
Jenn,
Welcome to the forum/family. I also am here to tell you that you're not going crazy!
Here you'll find people who understand this monster. We all share common symptoms but also vary in other ways. Here you can learn things, talk to understanding folks, hell even scream and vent and we'll understand and lend you advice and even steer you in the right directions if we can.
I'm so sorry for your battle with this monster but at least you found us...
Thank you sooooooo much Jimbo, you don't know how much I'm so grateful to have found you all! Its so comforting!
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Old 10-15-2011, 12:21 AM #3
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It may take a while to get a response, but we're here.....
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Old 10-15-2011, 08:11 PM #4
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JenniferQ:
Welcome, you will receive a lot of support and a place to vent. Sometimes you just want to vent and don't necessarily wants responses. Other times the RSD challenges become overwhelming (and we've all been there) and don't hesitate to ask for help.
We all live what you live!
Confidence in numbers.
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Jennifer Q (10-19-2011)
Old 10-18-2011, 11:15 AM #5
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jenn

I also really knew something was wrong when I had feelings of running ice water down my ankle and foot. But when I touched it, it was hotter then the other. Eventually it did become cold. more then 10 measurable degrees colder. Now it is up to my knee, starting in my other foot and occassionally in my left hand.
Thank god, it is not consistence in the other extermities. (yet)
But CRAZY! I sometimes feel like the only person who believes me is my family here on neurotalk and the doctor. A woman at work once told me I asked stupid questions. Memory is not all that sharp anymore. (I blame the meds)
I have had many lsb shots. (nerve blocks), a stimulator trial (failed). And I am considering ketamine.
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GOD help me be faithful in the midst of my suffering. Alt1268
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