Welcome Jenn,

I am a fan of warm water therapy pools because I spend a good part of the year freezing cold, and it helps me exercise my arms and shoulder a bit in comfort. But I see you live in Hawaii so perhaps that doesn't apply to you!!

Try to find the very best RSD doc that you can. A good physical therapist can be helpful also. They are really hard to come by when you have RSD.
The RSDSA has a database of docs, check it out. also check to see if there is a support group in your area, I learned an enormous amount about what local resources were available just by talking to others RSDers in RI.

There are some good support groups on FB, too.

We are all here for you. Xoxo. Sandy

Hi Sandy,
I live in Hawaii but I'm probably only the 2nd person (besides my momma) who wears a sweater EVERYDAY lol! It could be 80 degrees out and I am still freezing. People are always making fun of me! It's weird because I can be frozen and my left underpit is sweating! So I would be down for any type of warm water therapy. I used to be a waterbaby, I lived in the ocean my whole life-surfing, diving and fishing and I had an amazing tan but now I'm white as white can be and there's no way I would get in the ocean again. It sucks because my boys are waterbabies too and they absolutely love anything to do with the ocean but I watch them from the sand bundled up under my tent. I yearn so badly to get in there are enjoy time with my kids but I can't and that sucks some big b*lls!

I went in on Monday to see my doc and ask him how/why it progressed to my leg and he's got me going to see a pain management dr who specializes in RSD. So, I think I'm on the right track. He also gave me Gabapentin and Oxycontin but idk if I like the oxy as it kicked my butt and I didn't like the way it made me feel. I seriously couldn't keep my eyes open and I was talking in bubbles. My poor family probably thought I was crazy lol! I'm seeing a tremendous change in my leg only....maybe because its so new but I can walk a little better. Have you ever tried those two? When I take it I feel all these tiny muscle spasms all over my body. It feels weird! I don't know which one is doing that to me. Thank you for your support! I appreciate it soooo much!

Jenn

2 things-- have your hormone levels checked. RSD can reduce your estrogen levels, your levels further decrease when you have your period, so that's why you feel worse at that time.

Have you tried going in the ocean? Try it when you're having a decent day. It really decreases my pain, enough so that I'm considering moving to the Big Island.