Thank you Ginnie!

Its amazing how I can be here and feel so much hope and support from people whom I've never met. I am so blessed to have been able to stumble upon this forum! Even though we don't know eachother like I said before, there is a common denominator that binds us together. And if I could I would hug you through this computer to let you know I'm. Grateful for you! I'm new to all this and having to come to terms with it is quite difficult for me. But I thank you so much for your encouragement and hope

Jenn

I feel so llucky that I found this site. Noone seems to understand just how difficult it is for me to deal with RSD and the discomfort I am going through especiallly now when the weather keeps changing. Rain is the worst so far. Wish there was a way we could talk as I feel close here with all of you. I am Grateful for the wonderful people and everyone needs support and to be encouraged. This forum by far is wonderful and without it too relate to all of you, I would feel alone. Thanks.

I love this site as well. This is a family of people sharing and caring as if we reach out with open arms being understood by those who also fell victim to this monster. A place to chat, ask questions or just vent. People here don't seem to mind listening to the rambles of me (lol)...

Hi Jenn,
I am very sorry you had to meet up with an ignorant person such as that lady was to you as well as those security guards. I do have to say "Go Mom" to your mom...gosh I love that woman!!! I'm glad she told them all a few things. Sweet!

I think what Litlove said is true about time to get a wheelchair. People will look at a wheelchair as you are soooo dependent on it but we as RSDers look at it as being more independent. This way people will leave you alone. You will get stared at alot too and people will still say rude things to you esp when you look young. I try to educate people about rsd and try not to get offended by the looks and questions they make. Later I laugh about them because they are so rude. You can use the wheelchair to keep some of your strength. I would add anything to it that helps you last through the game. I use a pillow to sit on and a blanket to wrap around my legs. I was thinking you can get some school stickers or make up some and have your kids put them on your "ride." This way the kids won't feel strange about having their mom in a wheelchair and it will lighten things by having the school colors or stickers on your wheelchair. Also, the kids will probably fight over the chair as my son and his friends have done in the past. They got real good using it around the house and can do wheelies on it too lol. Kids are usually fine about canes and wheelchairs it's the adults that have a hard time with them.

Also, I would send a certified letter to the school admin letting them know how rudely you were treated and how that lady was so nasty to you and your family. I would have stayed there and said "Yes, we are in the right spot." And if she gave you any crap I would have told her to mind her own business and stop being rude. She sounds like you needed to open up a mom can of whup a@@ on her haha. But it seems like you mom had that part all handled ;.). Hang in there and try to make all outings as easy for YOU and not other people. Best of luck.
kathy d

Jenn,
As gentle and patient as I am (lol) at times even I can be pushed too far. If I were in that sort of situation I would have said to those security guys "I'll leave if your supervisor tells me to my face to leave"....

It took me 12 hours to make a 3 hour drive a few years into having RSD, but before I had accepted the limitations it brought. It was for my bf's wedding shower. I'd drive 1/2 an hour. Stop. Take meds. Wait to be not too medicated. Rinse & Repeat.

My bf didn't believe that I had really taken that long or required such extreme methods.

So when our nearest and dearest struggle with our illnesses, what can we really expect from strangers?

People will surprise you with their compassion, and others will surprise you with their nastiness. Many will seemingly take your illness personally--which I don't understand at all. It's as if they think you've done something to bring it upon yourself. They don't want to believe it could happen to
themselves I suppose. Everybody will have a cure after doing a 2 minute Internet search. And yeah, maybe trying some of those things are worthwhile, but there can be an expectation that it's easy to go into remission. If you fail to get better in their expected time frame...

My vent for the month...

We got a wheel chair just for shopping and school events because many times you have to park so far away. And I use a cane when I'm walking, not because I really need it, but it acts as a signal to those "huff and puffers" that think I'm moving at a snail's pace that I do have difficulties. People seem to go around without making comments when I use the cane. Just don't hang it over a chair in a restaurant and forget it. I also have a mobility scooter that I've used at Cross Country meets, tennis matches. I can go, and not be as restricted as sitting in the car is.