Thank you for reading my posts.
Sometimes I wonder what is happening as every day is different. I hate the feeling of my fingers feeling like they have floating pebbles in them. I don't know how else to explain it except that they really hurt and I can't explain the exact feeling.

I have 2 nerve blocks, one which the burning stopped and that was 9 months ago and tthis past Feb another one which helped with other pain; now I am thinking I might have another one to stop this rocky or pebbly feeling in my fingers. Who knows as this is all a guessing game.

The Lyrica didn't seem to work and my pain management is weaning me off it. By the way I have a new pain management doctor who is more knowledgeable and has done other tests. And yes we do take things for granted as We need our thumbs and pointer fingers. What a bummer...so frustrating.

Still hoping...still have support...trying to keep busy but too many doctors I am going to...this is a fight I need to win and so do we all.

I hope you are doing better.

Best of luck and best wishes.

It is critical to find professionals and assemble a TEAM of them to help you. CRPS absolutely responds best to a multi-disciplinary approach.

I have CRPS in my foot. I use my podiatrist as my primary doctor for CRPS. Along with him, I use a chiropractor, physical therapist, pain management doctor and massage therapist.

And I would recommend you check out this link which has some excellent complementary techniques that may help you. Click on the link and scroll down to "healing practices A-Z".

http://www.takingcharge.csh.umn.edu/

This condition is so very unique. What works for one may or may NOT work for another.

Things can get better. I remember the day I came down with CRPS. September 11, 2008. It took me one year and a half a dozen doctors to diagnose it (not good as I was in a boot which made the CRPS spread), one year to figure out how best to treat it, one year to get it to settle down and I am now in my 4th year and it is better than it ever has been, although still a pain in the ***! (or foot for me). I'm off of percocet, but have a cocktail of other medications that control it. Gabapentin (generic for Neurontin), amitriptyline, trazodone for sleep, naproxen sodium for inflammation, ultram for breakthrough pain.

Good luck and be sure to keep us posted.