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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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So the main doctor (work comp) who is treating me for crps has told me he has never seen a case of it spreading. I had a traumatic injury to my right index finger almost 1 year ago. It took several months of negative lab tests, to be diagnosed with CRPS. I always presented with the appearance of CRPS in the injured finger. Not sure if that made sense (Bone scan showed increased uptake, thermogram and QSART negative) Anyway, my finger has been the main issue.
For the last few months I have had a burning pain throughout my arm into my shoulder and also in my leg. No shiny skin or swelling just an always present burning... sorry for the rambling the last two days have been the worst yet. I'm getting ready to get fired, MMI is coming up, how will I find a job in this condition? Ughh... The only thing I feel like I have going for me right now is that hopefully the pain will die down soon. Meanwhile I can't get an answer to why my arm and leg are on fire... |
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#2 | |||
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Member
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Ed,
Welcome to the forum. Don't just visit, join. Sorry about your condition. I notice the doc says he never SAW it spread. A lot of WC doctors will say that. But it does! Keep in mind you have the right to a second opinion. Find a neurologist who has dealt with RSD and you'll find out it does. Once your nerves get RSD it can spread anywhere. Mine started in my left wrist/hand and has spread up my arm, left side of my neck and head and is now starting in my left foot/leg. You'll find most folks in here have some spreading going on. If a doctor says RSD doesn't spread he/she is the wrong doctor...
__________________
Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#3 | ||
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Junior Member
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I will be seeing three neuros soon. Too bad the only reason I am being sent to them is for a pension eval. Throughout the whole thing WC never sent me to one.
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#4 | ||
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Junior Member
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The pension eval is from a seperate insurance company then the WC company.
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#5 | ||
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Magnate
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Purchasing a NOLO WC book for your state would be the first thing I'd do.
Do you have a WC attorney? You need to learn your state WC laws and aggressively advocate for yourself, or you'll need to hire an attorney if you don't already have one. Be very, very careful with who you hire, if you go that route. At least in Cali, it's a problem replacing a bad one since both (the original and replacement attorneys) have to split the fee. I'd do lots of research first and then interview at least 3. |
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#6 | ||
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Junior Member
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Wow 4am, even my lower back has joined the burn... I talked to several lawyers. No one wanted my case becase it was just a finger and wouldnt bring them much money. I ended up with someone who seemed somewhat familiar with crps and was willing to take my case because it was the right thing to do.
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#7 | |||
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Member
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Ed,
You definetley need your own doc. WC doc. work for the carrier and your employer, they will never tell the complete story. If you look under pictures on this site. There is a diagram that talks about spread. You need a dr. who will document and treat all the areas. So when you go for your MMI hearing that is included. When you get your new dr. you should discuss SSDI. I have to agree with Jimbo and Lit love, you should have an RSD atty. I have struggled with mine personally (not sure if its my meds or just a clash) But I have heard of people getting screwed by wc and their atty. Anyway, Welcome to the group. It's a great place to talk, rant or rave. ![]()
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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#8 | ||
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Junior Member
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Thanks, I'll look for the diagram now.
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