[6kiddos]

I have been lurking a lot for a while but haven't taken the time to post. Anyway, I just need to vent somewhere. I feel like RSD has taken over my life. I have to admit hat I feel lucky in hat I was diagnosed early on and with the blOcks and lyrica the burning and sensitivity are fairly controlled. The pain on the other hand, not so much. I have adjusted my life to fit this but I am finding it hard to feel I have much purpose anymore. This Past winter I have started with joint psi and now. Am going MORE testing for arthritis. . I have been begging (well my idea of beggIng) for something long acting for the pain. I was never taken seriously. I finally had a breakdown with my PM this week. I started crying and said I feel this monster is winning. I lists how it has taken specific things from my life. He said "You put on anreally good smile" and then said i should not do that for him He fiannly offered something long acting. He gave me Nucynta 100 mg ER. He gave me one dose Per day and i am finding it helps for about 6 hrs instead of 24. Sigh. What should I do? I can't get in to see him until late May anyway so I am thinking I should just deql with it until then? I am keeping a detailed pain journal for now so I can share it with him. Why do I have to lose it for them to listen to me? I try soooooo hard to stay in control and have a smile On my face, almost like I can function better with the smile. I try to be what my family wants me to be. Even when it makes me hurt. Like right now, I am in Hawaii dealing with dampness and rain off and on just to make dh happy. We are spending a week here ( which is great in some ways because I get a break from the kids and time with dh) With the in-laws who have not looked up RSD and who think dr's don't really know it all and everything can b fixed with a supplement. They still think I have plantar fasciitis and won't listen that BOTH feet are bad. . Wish me luck! Ok rant over. Things will get better right ? Things just keep happening. My dearest friend is moving, I got my first ticket, I had a toothache and needed a root canal, I needed my wisdom tooth pulled ( root erosion out of the blue), my joints becoming very painful in the morning, I have to have a me removed, ( there is more just cannot list it all). Sorry this ended up like a book. Lol. Thanks for listening.

[mommystime2]

i feel ur pain. alot of times i wish things would end but they wont, the depression is the worst, docs not listening, ppl not understanding. just before i read this i text my sister saying i hate my life! try washing dishes one handed these kids dont get it, ppl dont get it. one day the pain is low the bugs arent so bad so i can use it then the next day the cold damp air makes pain and bugs come back

[kathy d]

Hi 6Kiddos,
Sorry you are having to deal with all this mess but at least you can excuse yourself and take some much needed time for you. People just don't get it I understand AND I have given up after 7 1/2 years of dealing with this mess. My family is the worst. I have tried to educate them and they are just clueless...mainly in denial...that is the way they deal with everything. You just need to look people in the face and say "I cannot do this or that because I am having a bad pain day." Then walk away and do things to make you comfortable. If they don't like it then oh well. You sound like you may have fibro as you said your joints are becoming very painful in the morning. Mornings are my worst too. Maybe the warm salty ocean will help with the pain so try that and see what happens. I have massive dental issues that work comp said they didn't handle... duh I never had a tooth problem (one root canal my whole life) and now I am working on my umteenth one. I gave up counting root canals and crowns. I do light yoga stretches and exercise more now than ever and it seems to help with pain. I also have been doing natural vitamins via an iv for the past year 1/2 and have to say it is the ONLY thing (besides lots of prayers and a miracle) that has helped me. I am off all pain meds (after five years) and only take 1/2 muscle relaxer and one Melatonin. I take nothing all day. This past week I've had more burning pain but I think because I have been doing much more than I have in years and we have had overcast and rainy days here in eastern PA. Well try to enjoy yourself and get lots of rest.
Take care,
kathy d